From the Department of Paediatrics (S.V.), The University of Melbourne, Victorian Paediatric Palliative Care Program, The Royal Children's Hospital Melbourne, Murdoch Children's Research Institute; Department of Nursing Research (J.O.), The Royal Children's Hospital Melbourne; Victorian Paediatric Palliative Care Program (J.H.), The Royal Children's Hospital Melbourne; Department of Paediatrics The University of Melbourne; and Department of Paediatrics (L.G.), The University of Melbourne, Children's Bioethics Centre, The Royal Children's Hospital Melbourne, Parkville, Australia.
Correspondence to: Sidharth Vemuri, MBBS(Hons)/BMedSci, FRACP, FAChPM, Victorian Paediatric Palliative Care Program, 50 Flemington Rd, Parkville VIC 3052, Australia (e-mail: [email protected]).
S.V. is supported by the Australian Government Research Training program, provided by the Australian Commonwealth Government and the University of Melbourne. The other authors declare no conflict of interest.
This study was funded by the Melbourne Disability Institute at The University of Melbourne and the Bethlehem Griffiths Research Foundation.
All authors were involved in the design of this study. J.O. collected the data, and we were all involved in data analysis. We have all read and approved the final manuscript.
Ethical approval was granted by Research Ethics Governance at the Royal Children's Hospital (HREC/50340/RCHM-2019) on December 18, 2019. Participant consent was obtained in verbal and written formats before commencement of the study.
Participant consent for publication was obtained before commencement of the study.
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