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Quality of Life of Caregivers of Individuals With Parkinson’s Disease

Lee, JuHee, PhD, APRN, RN1; Kim, Sung Hae, MSM, RN2; Kim, Yonji, MSN, RN2; Kim, Yie Lin, MSN, CRRN, RN3; Sohn, Youngho, PhD, MD4

doi: 10.1097/rnj.0000000000000158
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Purpose This study aimed to construct a structural equation model to predict the quality of life of caregivers of individuals with Parkinson’s disease.

Design A cross-sectional survey using a structured questionnaire in South Korea.

Methods A total of 208 subjects participated in this study from August 31 to November 26, 2015. The questionnaire included caregiving appraisal, social support, educational program needs, and the Parkinson’s Disease Questionnaire-Carer.

Findings Participants were either spouses (46.2%) or adult children (45.2%) of individuals with Parkinson’s disease. The mean score obtained on the caregiver’s quality of life was 40.94 ± 25.30. Social support, caregiving appraisal, and educational program needs were the predictors, explaining 67.0% of the variance in caregiversquality of life.

Conclusions Predicting the quality of life is useful for the development of support resources for caregivers of individuals with Parkinson’s disease. Further studies exploring the multidimensional aspects of caregiversquality of life are needed.

Clinical Relevance Rehabilitation nurses should identify caregivers at high risk in order to improve their quality of life. Nurses should assess education program needs and caregiving appraisal of caregivers of individuals with Parkinson’s disease and develop a customized intervention program.

This is an open-access article distributed under the terms of the Creative Commons Attribution-Non Commercial-No Derivatives License 4.0 (CCBY-NC-ND), where it is permissible to download and share the work provided it is properly cited. The work cannot be changed in any way or used commercially without permission from the journal.

1 Mo-Im Kim Nursing Research Institute, College of Nursing, Yonsei University, Seoul, South Korea.

2 Graduate School, College of Nursing, Yonsei University, Seoul, South Korea.

3 Research Assistant, College of Nursing, Yonsei University, Seoul, South Korea.

4 Department of Neurology, Yonsei University College of Medicine, Seoul, South Korea.

Correspondence: JuHee Lee, PhD, APRN, RN, Mo-Im Kim Nursing Research Institute, College of Nursing, Yonsei University, 50-1 Yonsei-ro, Seodaemoon-gu, Seoul, 03722, South Korea. E-mail: jhl@yuhs.ac

Cite this article as: Lee, J.H. Kim, S.H., Kim, Y., Kim, Y. L., & Sohn, Y. (2018). Quality of life of caregivers of individuals with parkinson’s disease. Rehabilitation Nursing, 00(0), 00–00. doi: 10.1097/rnj.0000000000000158

© 2019 Association of Rehabilitation Nurses.