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Development of an Instrument to Assess Stroke Caregivers’ Readiness for the Transition Home

Camicia, Michelle, PhD, RN, CRRN, CCM, NEA-BC, FAHA1, 2; Lutz, Barbara J., PhD, RN, CRRN, APHN-BC, FAHA, FNAP, FAAN3; Harvath, Theresa, PhD, RN, FAAN1; Kim, Katherine K., PhD, MPH, MBA1; Drake, Christiana, PhD1; Joseph, Jill G., MD, PhD, MPH1

doi: 10.1097/rnj.0000000000000204
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Purpose The study purpose was to develop a measure to assess stroke caregivers’ commitment and capacity to assume the caregiving role prior to discharge.

Design Participants were caregivers of stroke survivors in an inpatient rehabilitation facility.

Methods A sequential, multimethod approach, which included item generation from qualitative data, review of items by expert clinicians, cognitive interviews to determine response format (n = 22), and item clarity (n = 20), and an analysis of pilot data were utilized.

Findings Cognitive interviewing provided information to improve item clarity.

Conclusion This instrument development approach resulted in the Preparedness Assessment for the Transition Home After Stroke (PATH-s), a 26-item self-report instrument. The PATH-s represents the domains of the Model of Caregiver Readiness, upon which the instrument was developed.

Clinical Relevance The PATH-s, once further validated, may guide healthcare providers in the development of tailored care plans to address identified gaps and better prepare caregivers for the transition home.

1 The Betty Irene Moore School of Nursing, University of California-Davis, Sacramento, CA, USA

2 Kaiser Foundation Rehabilitation Center, Kaiser Permanente, Vallejo, CA, USA

3 School of Nursing, University of North Carolina-Wilmington, Wilmington, NC, USA

Correspondence: Michelle Camicia, Kaiser Foundation Rehabilitation Center, Kaiser Permanente, Vallejo, CA. E-mail:

Cite this article as: Camicia, M., Lutz, B. J.,Harvath, T., Kim, K. K., Drake, C., & Joseph, J. G. (2019). Development of an instrument to assess stroke caregivers’ readiness for the transition home. Rehabilitation Nursing, 00(0), 00–00. doi: 10.1097/rnj.0000000000000204

© 2019 Association of Rehabilitation Nurses.
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