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Perspectives From Family Caregivers of Persons With Spinal Cord Injury in Hospital Versus Rehabilitation

A Pilot Study

Eberhard, Brigitte MScN, RN1; Knüppel Lauener, Susanne RN1; Mahrer Imhof, Romy PhD, RN2

doi: 10.1097/RNJ.0000000000000143

Purpose The study aims to assess differences in family preferences for involvement in the ongoing care of a hospitalized family member with spinal cord injury based on whether the patient was hospitalized for initial rehabilitation (Group R) or hospitalized to treat secondary complications (Group C).

Design Explorative cross-sectional design.

Method Family members rated the importance and experience of involvement on five subscales of the Patient Participation in Rehabilitation Questionnaire. Differences among the importance and experience scores between the groups were tested using the Mann–Whitney U test.

Findings Group C scored the importance to be involved significantly higher than Group R (M = 3.17 vs. M = 4.04, p =.01). No other significant differences between groups were detected.

Conclusion Family members of patients hospitalized for secondary complications want greater involvement in care compared to those hospitalized for rehabilitation.

Clinical Relevance Results indicate the need for tailored interventions using a family-centered approach and ongoing needs assessment.

1 Institute of Nursing, Zurich University of Applied Sciences, Winterthur, Switzerland

2 Nursing Science & Care Ltd., Winterthur, Switzerland

Correspondence: Brigitte Eberhard, Oberfeldstrasse 138, 8408 Winterthur, Switzerland. E-mail:

Cite this article as: Eberhard, B., Knüppel Lauener, S., Mahrer Imhof, R. (2019). Perspectives from family caregivers of persons with spinal cord injury in hospital versus rehabilitation. Rehabilitation Nursing, 44(6), 311–318. doi: 10.1097/rnj.0000000000000143

Online date: April 3, 2018

© 2019 Association of Rehabilitation Nurses.
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