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Families’ Needs of Patients With Acquired Brain Injury

Acute Phase and Rehabilitation

de Goumoëns, Véronique MScN, RN1,2,3; Didier, Amélia MScN, RN1,2; Mabire, Cédric PhD, RN1,3; Shaha, Maya PhD, RN2; Diserens, Karin PD3

doi: 10.1097/rnj.0000000000000122
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Purpose The aim of this study was to identify and compare the needs of families of patients with acquired brain injury (ABI) in acute care and rehabilitation settings.

Design A descriptive exploratory study was conducted.

Methods Data were collected in the acute care setting and in the rehabilitation setting during meetings with families (n = 54) of patients with ABI using the Family Needs Questionnaire.

Findings In both settings, families identified obtaining information about ABI or the patients’ health as the most important need, followed by support from health professionals.

Conclusion For families, accessing information about the disease situation was important regardless of patients being in the acute care or rehabilitation phase. To provide tailored care for these families, it is important to assess information needs systematically early in the acute phase of hospitalization.

Clinical Relevance A paradigm shift is desirable to include families in care, identify their needs, and support them in a more tailored way.

1Departement of Nursing, University of Health Sciences (HESAV), University of Applied Sciences and Arts Lausanne, Western Switzerland (HES-SO), Lausanne, Switzerland.

2University Institute of Higher Education and Research in Health, Faculty of Biology and Medicine, University of Lausanne, Lausanne, Switzerland.

3Lausanne University Hospital, Lausanne, Switzerland.

Correspondence: Véronique de Goumoëns, Departement of Nursing, University of Health Sciences (HESAV), University of Applied Sciences and Arts Lausanne, Western Switzerland (HES-SO), Lausanne, Switzerland. E-mail: veronique.degoumoens@hesav.ch

Cite this article as: de Goumoëns, V., Didier, A., Mabire, C., Shaha, M., & Diserens, K. (2019). Families’ needs of patients with acquired brain injury: Acute phase and rehabilitation. Rehabilitation Nursing, 44(6), 319–327. doi: 10.1097/rnj.0000000000000122

Online date: January 4, 2018

© 2019 Association of Rehabilitation Nurses.
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