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Determining the Needs of Family Caregivers of Stroke Patients During Inpatient Rehabilitation Using Interview, Art, and Survey

Camicia, Michelle PhD, CRRN, CCM, NEA-BC, FAHA1,2; Lutz, Barbara J. PhD, RN, CRRN, APHN-BC, FAHA, FAAN3; Markoff, Nina MSW4; Catlin, Anita DNSc, FNP, FAAN5

doi: 10.1097/RNJ.0000000000000129

The purpose of this study is to explore the needs of family members at the bedside of stroke patients (n = 12) admitted to an inpatient rehabilitation facility (IRF). Family members’ needs were determined through semistructured interviews, “Draw a Bridge” art therapy technique, and the Family Inventory of Needs. Family members described a family-centered approach to care that addressed the following needs: assistance with preparing for discharge, staff caring for family members, communication about the plan of care and what to expect postdischarge, and trusting the care provided by IRF staff. Art therapy revealed that stroke was a crisis with many unmet needs for the interviewer to explore. Descriptive statistical analysis of the Family Inventory of Needs revealed that both met and unmet needs were consistent with the interviews and the interpretations of the drawings. These findings inform the need for interventions during IRF to enhance communication, support, and effective caregiver education amidst the crisis of stroke.

1 Kaiser Foundation Rehabilitation Center, Kaiser Permanente Vallejo Medical Center, Vallejo, CA, USA.

2 The Betty Irene Moore School of Nursing, University of California, Davis, Davis, CA, USA.

3 School of Nursing, College of Health and Human Services, University of North Carolina Wilmington, Wilmington, NC, USA.

4 School of Social Welfare, University of California, Berkeley, Berkeley, CA, USA.

5 Kaiser Permanente Santa Rosa Medical Center, Santa Rosa, CA, USA.

Correspondence: Michelle Camicia, Kaiser Foundation Rehabilitation Center, Kaiser Permanente Vallejo Medical Center, 975 Sereno Drive, Vallejo, CA 94589, USA. E-mail:

Cite this article as: Camicia, M., Lutz B. J., Markoff, N., & Catlin, A. (2019). Determining the needs of family caregivers of stroke patients during inpatient rehabilitation using interview, art, and survey. Rehabilitation Nursing, 44(6), 328–337. doi: 10.1097/rnj.0000000000000129

Online date: January 4, 2018

© 2019 Association of Rehabilitation Nurses.
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