Original ResearchCaring for Family Caregivers: Perceptions of CARE Act Compliance and ImplementationRodakowski, Juleen OTD, MS, OTR/L, FAOTA; Leighton, Cassandra PhD, MPH; Martsolf, Grant R. PhD, MPH, RN, FAAN; James, A. Everette JD, MBAAuthor Information Departments of Occupational Therapy, School of Health and Rehabilitation Sciences (Dr Rodakowski) and Acute and Tertiary Care, School of Nursing (Dr Martsolf), University of Pittsburgh, Pittsburgh, Pennsylvania; Clinical and Translational Science Institute, Pittsburgh, Pennsylvania (Dr Rodakowski); AmeriHealth Caritas Family of Companies, Philadelphia, Pennsylvania (Dr Leighton); RAND Corporation, Pittsburgh, Pennsylvania (Dr Martsolf); and Health Policy Management, School of Public Health, University of Pittsburgh, Pittsburgh, Pennsylvania (Dr James). Correspondence: Juleen Rodakowski, OTD, MS, OTR/L, FAOTA, Department of Occupational Therapy, School of Health and Rehabilitation Sciences, University of Pittsburgh, Bridgeside Point I, 100 Technology Dr, Ste 350, Pittsburgh, PA 15260 ([email protected]). Coauthor James M. Redmond, MBA, LFACHE, died February 4, 2019. The authors thank Ms Allyson LaCovey (Health Policy Institute, University of Pittsburgh) for administrative support and Mr Robert G. Shipp III, MSHSA, RN, NEA-BC, and Ms Lisa Lesko, BSN, RN (The Hospital and Healthsystem Association of Pennsylvania) for their assistance in reviewing and distributing the survey. This study was funded by the Stern Family Foundation and the Emily Kelly Roseburgh Memorial Fund of The Pittsburgh Foundation (UN2016-85266) and the National Institute on Aging (R01 AG056351). The authors declare no conflicts of interest. Quality Management in Health Care: January/March 2021 - Volume 30 - Issue 1 - p 1-5 doi: 10.1097/QMH.0000000000000278 Buy Metrics Abstract Background: The Caregiver Advise, Record, Enable (CARE) Act encourages inclusion of family caregivers in the hospitalization process for patients. Translating the state laws into meaningful changes within the health care delivery system can be challenging and requires time. This study sought to examine early compliance with and implementation of the CARE Act reported by hospitals in the Commonwealth of Pennsylvania. Methods: We sent an online survey to hospital executives in Pennsylvania in 2017. Descriptive statistics were computed to examine hospital characteristics and used to assess compliance and implementation of the CARE Act tenets. Results: Most hospitals reported that changes have been and are being made to comply with the CARE Act (90.9%). Hospital executives reported that the family caregiver designation is available in 63.6% of the hospitals and notification of patient discharge is available in 45.5%. Hospital executives reported that family caregiver education and instruction is occurring in 31.8% of all inpatient stays. Hospital executives indicated that they are still developing processes to comply with the legislation and to integrate family caregivers into hospital systems and processes. Conclusions: Our findings suggest that hospitals are complying with the legislation, while fully operationalizing the components of the CARE Act is a work in progress. © 2020 Wolters Kluwer Health, Inc. All rights reserved.