Aims & Objectives:
Successful resuscitation of infants and children with congenital and acquired heart disease (CHD) requires an understanding of complex anatomy, physiology, residual lesions and loading conditions. In acute circumstances, these are difficult for inexperienced clinicians to understand, which can impact decision making. To make this information accessible and understandable, we developed a personalized electronic passport called My HeartPassTM for clinicians and parents.
Consensus from experienced pediatric cardiac intensivists and cardiologists identified anatomic, functional and physiologic attributes that would be beneficial to know while managing an acute resuscitation. The latest recommendations for the acute resuscitation of patients with CHD were included.
My HeartPassTM in paper and web-based format has been developed to provide succinct information during resuscitative and acute care. It includes: 1) patient demographic 2) cardiac diagnoses by echocardiography and schematic of the current circulation, 3) dated list of surgical and catheterization interventions, 4) assessment of physiologic and functional state and the relevant residual defects 5) resuscitation-related details including airway, vascular access, previous arrhythmias and cardiac medications, and 6) recommendations for management during acute resuscitation. Usability testing and implementation are in progress.
My HeartPassTM is a web-based application designed to capture pertinent personalized information to enhance management during acute resuscitation in children with CHD. We anticipate this passport will stay with the entire journey of the patient, including transition to adulthood and provide relevant information to caregivers such as primary healthcare clinicians and Emergency Medical Services who may otherwise be unfamiliar with these complex hearts.