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Direct-to-Consumer Genetic Testing and Potential Loopholes in Protecting Consumer Privacy and Nondiscrimination

Hendricks-Sturrup, Rachele M.; Prince, Anya E. R.; Lu, Christine Y.

Obstetrical & Gynecological Survey: October 2019 - Volume 74 - Issue 10 - p 578–580
doi: 10.1097/01.ogx.0000585308.66813.c8

(Abstracted from JAMA 2019;321(19):1869–1870)

A recent report from the National Academies of Science, Engineering, and Medicine expressed concern that more use of direct-to-consumer (DTC) genetic testing by law enforcement could impact how individuals perceive genetic testing benefits and risks. In this commentary, the authors are especially concerned that these perceived risks could add feelings of distrust or discrimination, especially for vulnerable groups and populations including immigrants, prisoners and former convicts, sexual minorities, and racial or ethnic minorities, resulting in less use of genomic medicine.

Precision Medicine Translational Research (PROMoTeR) Center, Department of Population Medicine, Harvard Pilgrim Health Care Institute and Harvard Medical School, Boston, MA (R.M.H.-S., C.Y.L.); and University of Iowa College of Law, Iowa City, IA (A.E.R.P.)

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