Speak Up

Enjoy essays and poetry by people living with neurologic disorders and their caregivers. Readers can also find letters to the editor.

Thursday, April 4, 2013

Letter to the Editor: Lyme Disease

I have been reading your Neurology Now magazine for quite a while now and I find very dishearting that I have seen nothing pertaining to Lyme disease and it's effect on the brain. 


I was diagnosed with everything from depression, anxiety disorder, and early-onset Alzheimer's disease. 


I made a trip to the emergency department with extreme groin pain and was diagnosed with inflammation of the testes. This resulted in a couple rounds of IV antibiotics and six weeks of oral antiobiotics. And something very strange happened--my cognitive symptoms went away.


Upon doing my own research, I discovered that Lyme disease is sometimes misdiagnosed as Alzheimer's disease, and I remembered a tick bite about eight years back accompanied by a bulls-eye rash. I was tested at the time but was told not to worry because there is no Lyme disease in North Carolina, which I know now is not rue.


Upon finding a doctor who was willing to treat me, he looked back through my medical records and discovered that the Western Blot was indeed positive. I was treated long term, and I am now functioning normally again.


I am not the only one: there are thousands more. These folks  are not crazy, mentally unstable, orpsychotic. They are sick and in need of help.   


John McLean

Chairman, Central North Carolina Chapter

National Capital Lyme Disease Association