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What a Cure Would Mean: Cavernous Angiomas

Wilkinson, Michelle

doi: 10.1097/01.NNN.0000429051.79431.c2
Departments: Letters

State Center, IA

My son has cavernous angiomas. He had a brainstem bleed nearly three years ago when he was nine. He is doing very well, but his behavior and personality changes continue to be difficult for our family to deal with. They are more of a burden to my son, now 12, than the loss of sensation on the left side of his face and the slow recovery of his hearing and coordination on that side.

A cure would mean a lot of things to our family. We know the cavernous angiomas are hereditary, so my son's three siblings each have a 50 percent chance of having them as well. We know they are a ticking bomb inside my husband's brain as well.

Knowing all that, today, my best answer to what a cure would mean is this: that my seven year old—that no one's seven year old—would have to ask “I know [my brother] has a brain injury, but why does he have to have it all the time?”

Michelle Wilkinson

State Center, IA

© 2013 American Academy of Neurology