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Thank you for your letter, Guy. I would suggest calling the National Multiple Sclerosis Society at 1-800-FIGHT-MS (344-4867) and speaking to one of their counselors. See Resource Central, page 49 of this issue, for other MS organizations.

We are in the process of rebuilding our website to make it more accessible to those facing the challenges of chronic illness. A schedule of future seminars is not currently listed, but based on your letter we'll add it as we rebuild the site.

I think you should also speak with a legal professional in Tennessee. You and your wife should have health care proxies, living wills, and HIPAA releases (these are explained in my article in this issue, page 42). A durable power of attorney and a revocable living trust might also be valuable.

As for the financial issues, you should meet with a financial planner. You might start by searching for a fee-only financial planner through the website of the National Association of Personal Financial Advisors ( If this is not affordable, the Financial Services Professional organization runs a wonderful volunteer program for the National MS Society to provide financial planning advice to those with MS.

© 2012 American Academy of Neurology