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Rare Diseases

Lewis, Terri A.


I was so intrigued and encouraged by Dr. Robin Brey's request for readers to share their experience with a rare disease (“Not So Rare,” April/May 2012). I am a rehabilitation specialist who works with many patients who have developed arachnoiditis, a pain disorder caused by the inflammation of one of the membranes that surround and protect the nerves of the spinal cord. I am also the parent of a young adult with arachnoiditis. Unfortunately, the condition often remains unrecognized—and patients underserved. Please consider doing an article on it.

—Terri A. Lewis

©2012 American Academy of Neurology