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Letters: Cruetzfeldt-Jakob Disease

Mandelbaum, Erica

doi: 10.1097/01.NNN.0000392626.07928.4d

My father was just diagnosed with Cruetzfeldt-Jakob disease, a degenerative and fatal brain disorder that causes dementia. The disease afflicts approximately one person per million worldwide.

Dad was and still is a brilliant man, an accomplished architect with an incredible vocabulary. He has been my mentor and role model. Even through the disease I can still feel his adoration for his family—there is no mistaking that look. He adores his three girls, respects his sons-in-law, and loves his grandchildren.

I inherited the movement disorder gene—I have Parkinson's—so I panicked at the thought of inheriting Cruetzfeldt-Jakob disease from my father. But I was wrong: I inherited his strength and logical mind.

Thank you Dad. We all love you and will meet this challenge together.

—Erica Mandelbaum

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Thank you for your letter, Erica. We wish you the best in coping with this illness. For more information on Creutzfeldt-Jakob disease, contact:

Creutzfeldt-Jakob Disease (CJD) Foundation Inc.


©2010 American Academy of Neurology