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Mayo, Graceann T.

doi: 10.1097/01.NNN.0000356886.70684.d2
Department: Letter

Santa Fe, NM

Thank you for your article (“More than a Feeling,” Mar/Apr 2009) about complex regional pain syndrome (CRPS), also known as reflex sympathetic dystrophy (RSD). I suddenly had the symptoms of RSD one morning in May 2004. I had no idea what was happening to me, but I experienced all the symptoms described in your article and more. I was mostly bedridden for about 3 months.

Then began a litany of visits to specialists, including neurologists, neurosurgeons, and anesthesiologists, each of whom wanted to help me, but who had minimal (if any) understanding of RSD. It was January 2005 before I was given the diagnosis of RSD, and in 2007 a second doctor confirmed my diagnosis as CRPS, Type I. It was affirming for me to read your accurate and hopeful article. Having this condition has pushed me more to focus on the working parts of my body and my life—I am now always looking for that part of the glass that is half full.

—Graceann T. Mayo

Santa Fe, NM

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