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Myasthenia Gravis

Burgess, Georgene

doi: 10.1097/01.NNN.0000345691.59934.3f
Department: Letter

Tampa, FL

Words cannot begin to express my deepest appreciation for publishing an article in your Nov./Dec. 2008 magazine regarding myasthenia gravis (MG). At the age of 53 my husband Terry was diagnosed with MG in June 2007. Six months prior, he had all the symptoms of MG, including the drooping eyes. He went into our bank one day and was told to leave—the bank accused him of being intoxicated. Once I had to call 911 because he couldn't swallow. The ER physician said he had laryngitis and wanted to discharge him, but an ENT diagnosed him with MG.

A CT scan of Terry's chest showed a tumor on his thymus, and although they wanted to do a thymectomy immediately, he was too ill for them to do so. A year and half later, my husband has regained the over 30 pounds he lost during this nightmare. He has chosen not to have the surgery, only taking minimal prednisone and mestinon when necessary. His neurologist disagrees with him, even though he couldn't guarantee that Terry would make it through the operation or see any improvement in the MG.

To look at my husband now, you would never know he was so ill. We live very happy, fulfilling lives, knowing what we're dealing with, and not letting it control us.

—Georgene Burgess

Tampa, FL

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