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Huntington's Disease

Bower, Sylvia A. R.N.

doi: 10.1097/01.NNN.0000267383.95911.39
Department: Letter

Powell, Ohio

I am encouraged by the in-depth articles in each issue of Neurology Now on all of the neurological diseases except Huntington's disease. I know that it is not as prevalent as some of the other conditions you cover, but it is also one of the most devastating diseases due to the feeling of being a prisoner in one's own body, which moves uncontrollably and at will. This disease creates more dysfunction in a family than the majority of people ever realize.

I subscribe to your magazine because Huntington's is in my sister's family. She lost her husband when she was 43, and this past December, at age 47, she lost her son Dean, for whom she was the caregiver. My nephew was very fortunate to be able to be treated at the Huntington's Clinic at the University of South Florida. My sister moved there so that Dean could have Dr. Juan Sanchez-Ramos as his physician. The clinic there was a wonderful support.

Please consider discussing Huntington's disease, and please include resources for Huntington's in Resource Central.

Sylvia A. Bower, R.N.

Powell, Ohio

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