Secondary Logo

Journal Logo

Commentary

Parallel Tracks

Reflections on the Need for Collaborative Health Disparities Research on Race/Ethnicity and Disability

Goode, Tawara D. MA*; Carter-Pokras, Olivia D. PhD; Horner-Johnson, Willi PhD; Yee, Silvia MA, LLB§

Author Information
doi: 10.1097/MLR.0000000000000201
  • Free

Abstract

The latest definition of health disparities used by Healthy People 2020—the national disease prevention and health promotion agenda for the United States—has now expanded to specifically include people with disabilities as a health disparities population (Table 1). However, in the past, policymakers interested in health disparities have primarily focused their attention on disparities experienced by racial and ethnic groups other than non-Hispanic whites. Disability disparities research remains little recognized within the broader health disparities field. The two bodies of research relevant to this supplement—research on racial and ethnic disparities and research on disability-related disparities—have evolved along separate tracks, in part because of the legacy of public health policy that funded health disparities research primarily based on race and ethnicity. This commentary reflects on the history, foci, and current status of these two separate tracks of health disparities research. That historical lens offers valuable insight as to why very little of the extant literature focuses on the intersection of race, ethnicity, and disability. We end with suggestions for future research that addresses both disability and race and ethnicity.

TABLE 1
TABLE 1:
Healthy People Disparities Goals and Inclusion of Disability

CURRENT STATE OF RESEARCH ON RACIAL AND ETHNIC DISPARITIES IN HEALTH AND HEALTH CARE

Although public health in the United States uses the term “disparity” widely, there are different opinions of what is meant.8,9 In general, the term refers to differences in health status or health care, which are considered both avoidable and unfair. For more than 3 decades, multiple reports have found disparities to exist across all aspects of health care access and quality, for many clinical conditions and many subpopulations including but not limited to those defined by race, ethnicity, sex, socioeconomic status, geographic locale, and, most recently, sexual orientation.10–14 However, public policy gave scant attention to these disparities until 1985 when a seminal report that examined racial differences in health care was issued to the Secretary of the US Department of Health and Human Services.13 Among the report’s conclusions was that health care in the United States was “a national paradox of phenomenal scientific achievement and steady improvement in overall health status, while at the same time, persistent, significant health inequities exist for minority Americans.”13p2 It is regrettable to note that this conclusion has not changed appreciably in nearly 30 years as evidenced by the most recent National Healthcare Disparities Report.14 For example, African Americans as a whole continue to experience an infant mortality rate that is more than twice that of whites, and Hispanics continue to experience disparities in access to care.

The Office of Minority Health was subsequently established in 1986 in the Office of the Secretary to lead public health efforts designed to address the nation’s racial and ethnic disparities. The Office of Minority Health, however, was not charged with implementing a research agenda; its mission was primarily focused on improving health of African Americans, American Indians/Alaska Natives, Hispanics/Latinos, and Asian American and Pacific Islander populations. It was not until 2000 and the passage of Public Law 106-525, the Minority Health and Health Disparities Research and Education Act, that United States’ public policy fully focused on the critical need for a national research agenda and infrastructure to address racial and ethnic disparities.15 This statute authorized the National Institutes of Health (NIH) to establish the National Center on Minority Health and Health Disparities (NCMHD) in 2000. With the passage of the Patient Protection and Affordable Care Act in 2010, the NCMHD was subsequently granted recognition as an NIH Institute.

Public health researchers interested in health disparities have used surveillance to raise awareness of issues to be addressed, conducted measurement research to refine exposure and outcome measures, identified causal relationships in natural settings through etiologic research, piloted potential actions through intervention research, and considered the impact of policies through evaluation research.16 Data have been used effectively to help prioritize issues; tell the story; provide a base for developing strong, long-term, multidisciplinary team approaches; and develop consensus with stakeholders around the importance of needed change.17

Specific examples of how epidemiologists and other researchers have impacted on policies to reduce/eliminate health disparities have included development and evaluation of housing interventions to reduce asthma exacerbations, data development (eg, health equity index), establishing the need for and evaluating moratoriums on new fast food restaurants in communities, and documenting the need for a diverse workforce.16 Recognition that the process of policy development, implementation, and evaluation is cyclical and requires ongoing data collection and analysis to be effective has led to success in reductions in disparities in key areas (eg, closing gaps in childhood immunization; reducing black/white gap in gonorrhea from 60:1 to 20:1).

Thomas et al18 have argued that much more needs to be done to effect change in policies and practice. There is a need for health disparities researchers to move aggressively beyond first-generation (detection), second-generation (understanding), and third-generation (provide solutions) research, to fourth-generation (take action) research. We would argue that there are still gaps in our knowledge of the nature and extent of disparities experienced by racial and ethnic groups. For example, the Institute of Medicine’s Committee on Advancing Pain Research, Care, and Education noted that data weaknesses regarding pain prevalence and care “are particularly important when one is examining racial and ethnic disparities, and only limited data are available on the prevalence of pain in certain population subgroups.”19 Funders such as the NIH have also expressed interest in related topics such as genetics and molecular epidemiology, acculturation and the Hispanic paradox, the intersection between health care disparities and the quality chasm, measures of racism and discrimination, health literacy, impact of policy changes on health care access and quality (eg, impact of the Affordable Care Act), and the application of interdisciplinary, community-based participatory research, qualitative and mixed methods, and translational research approaches. Because of ethical, financial, and other concerns, alternatives to clinical trials (often cited as the “gold standard”) are being considered for future research studies, such as meta-analysis, outcomes research, postmarketing surveillance, comparative effectiveness studies, and analysis of large multipurpose databases of patient information.

Even when we have some understanding of why health disparities occur, we still need further work in developing and evaluating interventions. For example, the Institute of Medicine’s Unequal Treatment report11 noted that health care disparities occur because of multiple factors such as pressures of time and cost-containment, access barriers (eg, language), health system financial and institutional arrangements and environments, and uncertainty, biases, and stereotyping by health care providers. Although cultural competency education and training has been recommended to partially address these concerns, little research has been conducted on the impact of such training on health outcomes.20 Related questions include21: what are the best practices, effective teaching methods, and faculty development in health literacy and cultural competency training? Can communication training focused on underserved populations change behavior and enhance patient comprehension? Is there a different impact of programs that aim to change attitudes versus focusing primarily on behavior change? How can we involve patients and community stakeholders in health professional training? These are just a few examples of common research questions that could be better addressed by involving researchers from multiple disciplines.

CURRENT STATE OF RESEARCH ON DISABILITY-RELATED DISPARITIES IN HEALTH AND HEALTH CARE

From its inception, public policy driving health disparities research in the United States has centered on the disease burden affecting populations defined broadly by demographic characteristics of race, ethnicity, and to some extent sex and socioeconomic status. Disability within the body of research on health disparities has primarily been treated as a negative health outcome or as a consequence of aging.22 This interpretation is consistent with a medical model of disability, in which disability is considered a problem (ie, diagnosis) within the individual. In the medical model, disability is viewed as a negative health outcome, and health professionals are tasked with preventing and curing such outcomes.23 However, other common approaches for conceptualizing disability include social and integrated models. Social models of disability emphasize the role of environmental barriers (eg, negative attitudes, physical structures) in limiting full societal participation. Correspondingly, social models stress the importance of social change and modification of environments to maximize access and inclusion.23 Integrated models, most notably the International Classification of Functioning, Disability and Health (ICF),24 incorporate aspects of both medical and social models.23 In the ICF, disability is an umbrella term that encompasses impairments (problems in body structure or function), activity limitations, and restrictions in participating in work and social roles. Importantly, the ICF model also includes environmental factors that may interact with impairments to impede or facilitate participation.24

Building on newer models of disability, examination of health disparities affecting people with disabilities is an emerging area of focus in which researchers have only recently begun to document: (1) differences in health status that cannot be solely attributed to the presence of disability, and (2) the provision of disparate health care that is solely attributed to the presence of disability.25,26 The field of disability and health research in the United States began to emerge in the late 1980s, with the creation of state disability and health programs funded by the Centers for Disease Control and Prevention (CDC).27 Development of the field was further spurred by the 1990 passage of the Americans with Disabilities Act (ADA), which included requirements pertaining to health care settings as well as access to recreation, fitness, and other health-related resources.27 Also in 1990, health targets for people with disabilities were included in Healthy People 2000,28 and later expanded in Healthy People 201029 and Healthy People 20206 (Table 1). Reports from the Institute of Medicine30–32 and from the Office of the Surgeon General33,34 highlighting issues, gaps, and research needs related to the health of people with disabilities provided additional impetus for a rapidly expanding body of research on disability and health. McDermott35 noted that 88% of the extant disability and health literature was published after 1990, with an upward trajectory culminating in over 500 articles in the first 2 months of 2013 alone. Much of the literature in the field of disability and health is grounded in the ICF framework of acknowledging individual impairments while seeking opportunities to reduce barriers to optimal health and full participation.

The concept of “optimal health” for people with disabilities may require some explanation for those accustomed to thinking of disability as equivalent to poor health. Contemporary views separate the concept of disability as “functional limitation” from that of health.36 There are strong associations between chronic disease and disability,37,38 and poor health is much more common among people with disabilities than those without disabilities.39 Yet more than half of people with disabilities describe their health as good, very good, or excellent39,40 so it is clearly possible to have a disability and enjoy positive health. When disability and health are understood as 2 separate constructs, an individual can be at any point along either continuum.36 For example, a Paralympic athlete, despite having certain functional limitations, may have better general health and cardiovascular fitness than a sedentary individual with no disability.41 One goal of disability and health researchers is to determine how much of the poor health experienced by people with disabilities is attributable to modifiable factors (eg, health behaviors; access to and quality of health care) and therefore preventable.42

Disability research has been complicated by the heterogeneity of the population (encompassing multiple types of disabilities of varying severity and duration) and the lack of a clear consensus about how to operationalize measurement of disability in various data sources.43 Those challenges notwithstanding, a body of research has been built over the past 2 decades examining health care disparities impacting people with disabilities. For example, numerous studies have found that women with disabilities are less likely than women without disabilities to receive timely screening for breast and cervical cancer.44

Another important area of study has identified specific barriers people with disabilities experience when attempting to obtain health care. Barriers include economic and systemic factors (eg, insufficient insurance coverage for specialized or ongoing services; inability to afford needed care; poor coordination of care) along with lack of knowledge, negative attitudes, and discrimination on the part of health care providers.45 Further, the ADA is enforced only in response to patient-driven complaints or lawsuits filed with the federal government or the courts.46 Health care facilities do not have to demonstrate ADA compliance to be accredited.47 The lack of ADA enforcement has allowed structural and communication barriers (eg, offices and examination tables that are not wheelchair accessible; failure to provide sign-language interpretation services) to remain substantial impediments for people with disabilities.45,48 Indeed, the observed disparities in cervical cancer screening are likely attributable in part to particularly poor accessibility of gynecology practices.49

Disability disparity research has largely focused on the initial stage of detecting disparities.18 Research on health care barriers has elucidated some potential causes of disparities, and more recent multivariate analyses of population-based survey data have begun to delve more deeply into understanding a range of factors associated with disparities.50,51 Yet much of the research to date consists of overall comparisons between people with and without disabilities, with little attention to subgroup differences within the population. Some studies have conducted comparisons for subgroups with different types of disabilities,52,53 but before this supplement, only a few studies have examined intersections with other marginalized characteristics, including racial and ethnic disparities among adults with disabilities.54–56 Of particular concern is the fact that disability and health research has been of little interest to other health services researchers43 and is poorly integrated into overall health disparities research.26,47 A complex array of factors may contribute to the lack of interest and poor integration, including public policy and funding that has not prioritized disability research, the still common view of disability as a medical condition rather than a population group, and the lower value placed on the lives of people with disabilities relative to those without disabilities.

In a 2009 report on the state of health care for people with disabilities,47 the National Council on Disability (NCD) catalogued evidence of substantial health and health care disparities for people with disabilities, noted a number of important research and policy gaps, and issued a series of recommendations. Some of these recommendations were addressed, at least in part, in the Patient Protection and Affordable Care Act of 2010 (ACA). The ACA has been an important development for the disability and health field because it contains several provisions with significant potential for improving access to health care for people with disabilities. These include standard-setting for accessibility of diagnostic equipment, disability awareness training for medical professionals, and data collection to document disability-related disparities. Other focal elements are expansion of Medicaid coverage (in participating states); expanded coverage for clinical preventive services, prescription drugs, mental health and substance abuse services, rehabilitative and habilitative services and devices, chronic disease management, wellness services, and home and community-based services for people with disabilities; and an emphasis on care coordination. Importantly, insurers are now prohibited from denying insurance coverage on the basis of preexisting conditions, and annual and lifetime caps on benefits have been removed. Passage of the ACA has spurred new research efforts to predict and/or document outcomes for people with disabilities.57

Unfortunately, many of the NCD’s recommendations have yet to be met. Key among them is broadening the definition of “health disparity population” in the Minority Health and Health Disparities Research and Education Act (MHHDREA) so that people with disabilities can be better integrated into the health and health care disparities research supported by the National Institute on Minority Health and Health Disparities and other Federal agencies.47 Although the ACA recognizes people with disabilities as a health disparity population, most health disparities research funding is allocated through the MHHDREA.58 Historically, the primary focus of that research has been on race and ethnicity. Yet race and ethnicity intersect with disability in important ways. For example, African Americans, Latinos, and American Indians have increased risk for severe disability resulting from chronic disease (eg, vision loss and amputation as sequelae of diabetes).59,60 Ironically, the health and self-care information that these individuals especially need is very rarely available in alternate formats (eg, large print for people with limited vision). We argue that attention to additional disparities associated with disability is particularly relevant for constituency groups concerned with racial and ethnic health disparities. Indeed, racial and ethnic minorities with disabilities have been identified as an especially underserved and vulnerable group whose needs are important to address as the ACA is implemented.61

MERGING THE TRACKS: WHERE DO WE GO FROM HERE?

Research in both tracks frequently fails to address the multiple cultural identities62 within population groups. We hope this supplement encourages racial and ethnic disparity researchers to think about the additional impact of disability, which spans all racial and ethnic groups. Similarly, we encourage disability researchers to consider the high degree of diversity within the disability population, and the ways in which racial and ethnic disparities operate in that population. The opportunity is ripe for researchers from both fields to collaborate on a research agenda to address health disparities at the intersection of disability, race, and ethnicity. Last but not least, we urge funders to promote research portfolios that are inclusive of individuals with disabilities from diverse racial, ethnic, and cultural groups.

Both quantitative and qualitative studies are needed to understand the experiences of people “at the intersection” and determine whether the barriers they face are multiplied because of their unique status. Further, there is a need to create and study health disparity interventions that are culturally and linguistically competent for the diverse population of people with disabilities “at the intersection.”63 This will require approaches to research that acknowledge and measure myriad cultural differences among people with disabilities effectively, rather than simply using race and ethnicity as proxies for culture. Diversity includes factors beyond disability and race and ethnicity. For example, researchers must also be able to elicit the “experiences of someone who self-identifies as African American, female, lesbian, with a disability, who is married to a woman and has children.”64 Research will prove more valuable if the culturally diverse populations that are studied have an investment and are active participants in all aspects and phases of the research process. Community-based participatory research approaches should include people with disabilities and the accommodations necessary to ensure their meaningful involvement.

We hope current definitions of health disparities—along with recognition that people with disabilities can be healthy and that many of the causes of their poor health are preventable—will facilitate better integration of people with disabilities into broader health disparities research and prevention efforts. As the diversity of our population continues to increase, and as people with disabilities continue to live longer and fuller lives, we look forward to an era of expanded consideration of disability-related disparities and the ways in which they intersect with race, ethnicity, and other characteristics associated with cultural identity and social determinants of health.

ACKNOWLEDGMENTS

The authors are grateful to Gloria L. Krahn, PhD, MPH and Ronnie D. Horner, PhD for insightful comments on earlier versions of this commentary.

REFERENCES

1. Centers for Disease Control and Prevention (CDC). Health objectives for the nation healthy people 2000: National health promotion and disease prevention objectives for the year 2000. MMWR Morb Mortal Wkly Rep. 1990;39:689695-697.
    2. Centers for Disease Control and Prevention (CDC). Healthy people 2000 progress review: Diabetes and chronic disabling conditions. Available at: http://www.cdc.gov/nchs/healthy_people/hp2000/reviews/diabetes.htm. Accessed June 30, 2014.
      3. Office of Disease Prevention and Health Promotion, U.S. Department of Health and Human Services. Healthy people 2010: What are its goals? Available at: http://www.healthypeople.gov/2010/about/goals.htm?visit=1. Accessed June 30, 2014.
        4. Centers for Disease Control and Prevention (CDC). CDC wonder data 2010 - focus areas. Available at: http://wonder.cdc.gov/data2010/focraceg.htm. Accessed June 30, 2014.
          5. Centers for Disease Control and Prevention (CDC). National Institute on Disability and Rehabilitation Research, Department of Education. Healthy People 2010: Chapter 6: Disability and Secondary Conditions. Centers for Disease Control and Prevention (CDC); National Institute on Disability and Rehabilitation Research, Department of Education. Available at: http://www.cdc.gov/nchs/data/hpdata2010/hp2010_final_review_focus_area_06.pdf. Accessed June 15, 2014.
            6. US Department of Health and Human Services. About healthy people: Healthy people 2020. Available at: http://www.healthypeople.gov/2020/about/default.aspx. Accessed June 30, 2014.
            7. US Department of Health and Human Services. Disparities: Healthy people 2020. Available at: http://www.healthypeople.gov/2020/about/DisparitiesAbout.aspx. Accessed June 30, 2014.
              8. Carter-Pokras O, Baquet C. What is a health disparity? Public Health Rep. 2002;117:426–432.
              9. Braveman P. What are health disparities and health equity? We need to be clear. Public Health Rep. 2014;129suppl 25–8.
              10. Washington HA. Medical Apartheid: The Dark History of Medical Experimentation on Black Americans From Colonial Times to the Present. 2006.New York, NY: Harlem Moon.
              11. Institute of Medicine. Unequal Treatment: Confronting Racial and Ethnic Disparities in Health Care. 2002.United States: Institute of Medicine.
              12. Byrd WM, Clayton LA. An American health dilemma: Race, medicine, and health care in the United States 1900-2000. 2002.New York, NY: Routledge.
              13. Heckler M. Report of the Secretary’s Task Force on Black and Minority Health. 1985.Washington, DC: Task Force on Black & Minority Health. U.S. Department of Health and Human Services.
              14. Agency for Healthcare Research and Quality (AHRQ). 2013 National Healthcare Disparities Report. 2014.Rockville, MD: Agency for Healthcare Research and QualityAHRQ Publication No. 14-0006.
              15. National Institute on Minority Health and Health Disparities. National institute on minority health and health disparities - organization - the NIH almanac - national institutes of health (NIH). Available at: http://www.nih.gov/about/almanac/organization/NIMHD.htm. Accessed June 30, 2014.
              16. Carter-Pokras O, Offutt-Powell TN, Kaufman JS, et al.. Epidemiology, policy and racial/ethnic minority health disparities. Ann Epidemiol. 2012;22:446–455.
              17. Davis F, Peterson C, Bandiera F, et al.. How do we more effectively move epidemiology into policy action? Ann Epidemiol. 2012;22:413–416.
              18. Thomas SB, Quinn SC, Butler J, et al.. Toward a fourth generation of disparities research to achieve health equity. Annu Rev Public Health. 2011;32:399–416.
              19. Committee on Advancing Pain Research, Care, and Education. Relieving Pain in America: A Blueprint for Transforming Prevention, Treatment, and Research. 2011.Washington, DC: Institute of Medicine.
              20. Lie DA, Lee-Rey E, Gomez A, et al.. Does cultural competency training of health professionals improve patient outcomes? A systematic review and proposed algorithm for future research. J Gen Intern Med. 2011;26:317–325.
              21. Lie D, Carter-Pokras O, Braun B, et al.. What do health literacy and cultural competence have in common? Calling for a collaborative health professional pedagogy. J Health Commun. 2012;17suppl 313–22.
              22. Drum C, McClain MR, Horner-Johnson W, et al.. Health Disparities Chart Book on Disability and Racial and Ethnic Status in the United States. 2011.Durham, NH: Institute on Disability, University of New Hampshirehttp://iod.unh.edu/pdf/Health%20Disparities%20Chart%20Book_080411.pdf.
              23. Iezzoni LI, Freedman VA. Turning the disability tide: the importance of definitions. JAMA. 2008;299:332–334.
              24. World Health Organization. International Classification of Functioning, Disability and Health. 2001.Geneva, Switzerland: World Health Organization.
              25. Iezzoni LI. Eliminating health and health care disparities among the growing population of people with disabilities. Health Aff. 2011;30:1947–1954.
              26. Krahn GL, Walker DK, Correa-de-Araujo R. Are people with disabilities an unrecognized health disparity population? Am J Public Health. 2014(In press).
              27. Turk MA, McDermott S. From the editors. Disabil Health J. 2008;1:3–4.
              28. United States Department of Health & Human Services. Healthy People 2000. 1990.Washington, DC: United States Department of Health & Human Services.
              29. US Department of Health and Human Services. Healthy People 2010. 2000.Washington, DC: US Government Printing Office.
              30. Pope AM, Tarlov AR. Disability in America: Toward a National Agenda for Prevention. 1991.Washington, DC: National Academy Press.
              31. Institute of Medicine. The Future of Disability in America. 2007.Washington, DC: The National Academies Press.
              32. Brandt E, Pope AM. Enabling America: Assessing the Role of Rehabilitation Science and Engineering. 1997.Washington, DC: National Academy Press.
              33. United States Public Health Service. Closing the Gap: A National Blueprint for Improving the Health of Individuals With Mental Retardation. Report of the Surgeon General’s Conference on Health Disparities and Mental Retardation. 2001.Washington, DC: Office of the Surgeon General, US Department of Health and Human Services.
              34. United States Department of Health and Human Services. The Surgeon General’s Call to Action to Improve the Health and Wellness of Persons With Disabilities. 2005.Washington, DC: Office of the Surgeon General, US Department of Health and Human Services.
              35. McDermott S. A call to action: What constitutes evidence for interventions related to disability and health? Disabil Health J. 2013;6:155–156.
              36. Krahn GL, Fujiura G, Drum CE, et al.. The dilemma of measuring perceived health status in the context of disability. Disabil Health J. 2009;2:49–56.
              37. Khoury AJ, Hall A, Andresen E, et al.. The association between chronic disease and physical disability among female Medicaid beneficiaries 18-64 years of age. Disabil Health J. 2013;6:141–148.
              38. Gulley SP, Rasch EK, Chan L. The complex web of health: Relationships among chronic conditions, disability, and health services. Public Health Rep. 2011;126:495–507.
              39. Centers for Disease Control and Prevention (CDC). Disability and health data system (DHDS). Available at: http://dhds.cdc.gov. Accessed Mar 17, 2014.
              40. Drum CE, Horner-Johnson W, Krahn GL. Self-rated health and healthy days: Examining the “disability paradox”. Disabil Health J. 2008;1:71–78.
              41. Horner-Johnson W, Krahn GL, Suzuki R, et al.. Differential performance of SF-36 items in healthy adults with and without functional limitations. Arch Phys Med Rehabil. 2010;91:570–575.
              42. Krahn GKrahn G. Changing concepts in health, wellness and disability. Proceedings of Changing Concepts of Health and Disability: State of the Science Conference and Policy Forum. 2003.Portland, OR: Oregon Health & Science University.
              43. Iezzoni LI. Imperatives for HSR addressing individuals with disabilities – the canaries in health care’s coal mine. Med Care. 2013;51:133–136.
              44. Armour BS, Thierry JM, Wolf LA. State-level differences in breast and cervical cancer screening by disability status: United States, 2008. Womens Health Issues. 2009;19:406–414.
              45. Drainoni M, Lee-Hood E, Tobias C, et al.. Cross-disability experiences of barriers to health-care access. J Disabil Policy Stud. 2006;17:101–115.
              46. Mudrick NR, Schwartz MA. Health care under the ADA: a vision or a mirage? Disabil Health J. 2010;3:233–239.
              47. National Council on Disability. The Current State of Health Care for People With Disabilities. 2009.Washington, DC: National Council on Disability.
              48. Mudrick NR, Breslin ML, Liang M, et al.. Physical accessibility in primary health care settings: results from California on-site reviews. Disabil Health J. 2012;5:159–167.
              49. Lagu T, Hannon NS, Rothberg MB, et al.. Access to subspecialty care for patients with lower mobility impairment: a survey. Ann Intern Med. 2013;158:441–446.
              50. Courtney-Long E, Armour B, Frammartino B, et al.. Factors associated with self-reported mammography use for women with and women without a disability. J Womens Health. 2011;20:1279–1286.
              51. Horner-Johnson W, Dobbertin K, Andresen E, et al.. Breast and cervical cancer screening disparities associated with disability severity. Womens Health Issues. 2014;24:e147–e153.
              52. Havercamp SM, Scandlin D, Roth M. Health disparities among adults with developmental disabilities, adults with other disabilities, and adults not reporting disability in North Carolina. Public Health Rep. 2004;119:418–426.
              53. Iezzoni LI, Frakt AB, Pizer SD. Uninsured persons with disability confront substantial barriers to health care services. Disabil Health J. 2011;4:238–244.
              54. Centers for Disease Control and Prevention (CDC). Racial/ethnic disparities in self-rated health status among adults with and without disabilities—United States, 2004-2006. MMWR Morbid Mortal Wkly Rep. 2008;57:1069–1073.
              55. Parish SL, Swaine JG, Son E, et al.. Receipt of mammography among women with intellectual disabilities: medical record data indicate substantial disparities for African American women. Disabil Health J. 2013;6:36–42.
              56. Miller NA, Kirk A, Kaiser MJ, et al.. The relationship between health insurance and health care disparities among adults with disabilities. Am J Public Health. 2014;104:e85–e93.
              57. Gettens J, Henry AD, Himmelstein J. Assessing health care reform: Potential effects on insurance coverage among persons with disabilities. J Disabil Policy Stud. 2012;23:3–13.
              58. Yee S, Breslin ML. Achieving accessible health care for people with disabilities: why the ADA is only part of the solution. Disabil Health J. 2010;3:253–261.
              59. Lavery LA, van Houtum WH, Ashry HR, et al.. Diabetes-related lower-extremity amputations disproportionately affect Blacks and Mexican Americans. South Med J. 1999;92:593–599.
              60. Shi Q, Zhao Y, Fonseca V, et al.. Racial disparity of eye examinations among the U.S. working-age population with diabetes: 2002-2009. Diabetes Care. 2014;37:1321–1328.
              61. Advisory Committee on Minority Health (ACMH). Assuring Health Equity for Minority Persons With Disabilities: A Statement of Principles and Recommendations. Submitted to the U.S. Department of Health and Human Services, Office of Minority Health; 2011. Available at: http://minorityhealth.hhs.gov/Assets/pdf/Checked/1/ACMHHealthDisparitiesReport.pdf. Accessed June 15, 2014.
              62. Gill C, Cross WBalcazar F, Suarez-Balcazar Y, Ritzler-Taylor T. Disability identity and racial-cultural identity development: points of convergence, divergence and interplay. Race, Culture, and Disability: Rehabilitation Science and Practice. 2010.Sudbury, MA: Jones and Bartlett.
              63. Goode TD, Dunne MC, Bronheim SM. The Evidence Base for Cultural and Linguistic Competency in Health Care. 2006.New York, NY: The Commonwealth Fund.
              64. Goode T. Paper delivered for the national launch of the National Standards on Culturally and Linguistically Appropriate Services in Health and Health Care Presentation, for the U.S. department of Health and Human Services; 2013. Available at: http://link.videoplatform.limelight.com/media/?channelId=93b3c711dcec46d1bc20980acb4ecc1d&width=480&height=411&playerForm=PlayerStandard&deepLink=true. Accessed June 26, 2014.
              Keywords:

              health disparities; disability; race; ethnicity

              © 2014 by Lippincott Williams & Wilkins.