In Brief:
Key PointsMedian annual direct costs (including medication, diet, emergency room visits, hospitalizations, and clinic visits) were $3464 (interquartile range [IQR] $844–$5865) for adult patients and $1687 (IQR $1035–$4763) for caregivers.The time spent planning/prepping meals was 183 h/yr (IQR 114–331) for adults and 173 h/yr (IQR 84–205) for caregivers.Providers can better understand the burden of living with nephrotic syndrome, consider barriers when treating patients, and develop supportive strategies.
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