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Journal of Developmental & Behavioral Pediatrics. Publish Ahead of Print():, October 20, 2020
We used semi-structured qualitative interviews with parents and service providers to better understand the barriers parents experience when obtaining services for their children with disabilities though state programs. We found that parents experienced emotional and system navigation barriers. Service providers reported that parents lacked information about services and that the process was arduous. Parents also reported barriers once services were initiated such as finding qualified personal support workers and the burdensome paperwork required. We created a solutions toolkit for the state and other organizations to undertake to increase consumer satisfaction and uptake of these life changing services for families.
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