Secondary Logo

Journal Logo

Advanced Search

Video Gallery

Video Abstract: Transition from Pediatric to Adult Care for Youth with Chronic Diseases: Youth, Caregiver, and Provider Perceptions

Video Author: Vivian W. L. Tsang
Published on: 10.28.2021

This study takes an innovative approach to investigate the needs of young patients as they age out of paediatric care. Specifically, this three-phase mixed-methods study directly includes youth as co-researchers (YCR) from the creation of research objectives and implementation to data evaluation and knowledge translation. Challenges exist with siloed transition programs. It is important that comprehensive community support related to the pre-transition, transfer, and post-transition care of young patients be included in order for transition to be successful; a brilliant pre-transition preparation process is futile if post-transition care is unavailable or inadequate.

  Official Journal of the
Society for Developmental and Behavioral Pediatrics
The journal is a benefit of membership. For membership information, click here.

Related Videos

All Videos
Most Viewed
Most Emailed



Video Abstract: Embedding financial services in frequented, trusted settings: Building on families’ preexisting economic mobility efforts
Creator: Savannah Alexander, MPH
Duration: 5:46
Child poverty is associated with adverse life course outcomes and disproportionately burdens families of color. Free financial services improve economic and health equity but are underutilized for unknown reasons. As pediatrics begins to embed financial services in clinic and community settings, qualitative research is needed to understand their acceptability and use to improve uptake and effectiveness. We interviewed low-income parents, primarily of color, from an urban community school. We aimed to understand the impact of their experiences around economic mobility on their perceptions of the acceptability and use of financial services embedded in frequented, trusted settings (e.g., schools, clinics).
Play Video |
Video Abstract: Connectome Analysis in an Individual with SETD1B-Related Neurodevelopmental Disorder and Epilepsy
Creator: Rosa Weng
Duration: 4:50
Our study reports long-term data of a 24-year-old male with SETD1B-related neurodevelopmental disorder and early-onset epilepsy (with absence and generalized tonic-clonic seizures). He displayed cognitive deficits, autistic features and profound language impairment. A de novo missense variant in SETD1B (c.5699A>G, p.(Tyr1900Cys)), encoding a lysine-specific methyltransferase, was detected by trio exome sequencing. Functional MRI examination revealed a diverging language task activation as well as an aberrant resting-state connectivity of the right precentral gyrus. Taken together, these findings suggest an altered neural basis for language functioning involving the motor system in our patient with SETD1B-related disorder.
Play Video |
Video Abstract: Stigma, Intrusiveness, and Distress in Parents of Children with a Disorder/Difference of Sex Development
Creator: Katherine Traino, M.S.
Duration: 5:05
The impact of stigma due to their child’s disorder/difference of sex development (DSD) on parent psychosocial adjustment is poorly understood. In other pediatric populations, perceived interference of medical conditions into daily activities (i.e., intrusiveness) mediates the relationship of stigma to adjustment (i.e., depressive and anxious symptoms). The present study examined this mediation model in DSD. Parents who experience DSD-related stigma report greater interference of their child’s DSD into their daily activities, which is associated with poorer psychosocial adjustment. Findings support clinical interventions related to parents’ perceptions of stigma and intrusiveness to improve parent adjustment.
Play Video |
Video Abstract: Perspectives of Rural Primary Care Clinicians on Pediatric Attention-Deficit/Hyperactivity Disorder Care
Creator: Sean M. O’Dell
Duration: 4:42
Although there is a well-developed literature on efficacious treatments for pediatric Attention-deficit/hyperactivity disorder (ADHD), most families coping with ADHD receive suboptimal care. To increase access to high quality pediatric ADHD care in a predominantly rural health system, we conducted a qualitative pre-implementation study with primary care clinicians. We used the Practical Robust Implementation and Sustainability Model to guide the study. Our findings provide meaningful insights into how trainings and best practice guidelines and improvements to the electronic health record could be developed and implemented in a rural health system.
Play Video |
Video Abstract: Predictors of Stimulant Medication Continuity in Children with Attention-Deficit/Hyperactivity Disorder
Creator: Kelly Kamimura-Nishimura
Duration: 5:45
This study examines the simultaneous impact of patient, parent, and healthcare system factors on ADHD medication continuity. 84% of the children had at least 1 filled prescription, and a weaker perceived clinician-family working alliance predicted not filling any prescriptions. Factors linked to fewer days of medication coverage included non-White race, older age, being female, lower income, lower parent beliefs that ADHD affects their lives, and higher parent beliefs that medication is harmful, while child ODD and parental ADHD predicted better medication coverage. These findings may facilitate development of strategies to improve medication continuity for diverse children.
Play Video |
Video Abstract: Temper Tantrums in Toddlers and Preschoolers: Longitudinal Associations with Adjustment Problems
Creator: Alithe van den Akker
Duration: 4:54
Although temper tantrums are considered a normal part of child development, they are also a symptom of several behavioral and mood disorders. To differentiate normal range temper tantrums from those that may be an early warning sign of problems, we examined how three characteristics (frequency, duration, behavioral profile) were distributed in one- to five-year-old children, and how these predicted adjustment problems a year later. Characteristics differed across ages, different characteristics were predictive of internalizing versus externalizing problems, and children who were characterized by high aggressive and self-injurious behavior appeared especially important to pay attention to.
Play Video |
Video Abstract: Telehealth Utilization and Follow-Up Visits in Developmental Behavioral Pediatrics during the COVID-19 Pandemic in 2020
Creator: Asher Ripp, BS
Duration: 3:56
This study delineates the effect of transition to telehealth care on follow-up visit attendance in a developmental-behavioral pediatric (DBP) practice in 2020 versus in-person care in 2019. This retrospective observational cohort study investigated visits in a large DBP practice during a six-week period in 2019 & 2020. Telehealth follow-up visits were more likely to be completed compared to in-person visits, but families with public health insurance had a lower odds of visit completion. Follow-up visit care via telehealth may improve access to DBP care, but additional research should focus on strategies to prevent worsening of disparities of care.
Play Video |
Video Abstract: Toileting Resistance Among Preschool Age Children With and Without Autism Spectrum Disorder.
Creator: Lisa Wiggins
Duration: 4:21
Toileting resistance is more common among children with autism (49.1%) than children with other developmental delays (DD; 23.6%) and those from the general population (8.0%). Diarrhea and problems with social awareness were associated with toileting resistance in children with autism and other DD. Constipation, language delays, and low social motivation were associated with toileting resistance only in children with autism; problems recognizing patterns and shapes and oppositional behaviors were associated with toileting resistance in only children with DD. These findings may facilitate discussions between parents and providers about treatments for conditions that may place children at risk for toileting resistance.
Play Video |
Video Abstract: Suicidal Ideation in Adolescents: Understanding Results from Screening with the PHQ-9M and the PSC-17Pv
Creator: Juliana M. Holcomb, Anamika Dutta, Talia S. Benheim
Duration:
This study assessed the psychosocial vulnerabilities of adolescents with suicidal ideation (SI) using a large, national sample of adolescents (N=5,411) who were screened with both the Patient Health Questionnaire Modified for Teens (PHQ-9M) and the Pediatric Symptom Checklist (PSC-17P) at well-child visits. Nearly 5% of the sample reported past two-week SI. The presence and frequency of SI were associated with higher rates of internalizing, externalizing, and attention symptoms, as well as prior suicide attempts. Pediatricians can use the PHQ-9M and PSC-17P to screen for suicidal ideation and a broad range of psychosocial dysfunction and to target interventions accordingly.
Play Video |
Video Abstract: The Use of Person-Centered Language in Scientific Research Articles focused on Autism
Creator: Matt Barnard
Duration: 5:23
Drs. Monika Neale, Chelsea Arnhart, and Sara Coffey discuss the importance of using Person-centered language (PCL) within autism research and discuss our research quantifying PCL adherence rates among published articles.
Play Video |
Video Abstract: Physician voices on ECHO Autism India - Evaluation of A Telementoring Model for Autism in a Low-Middle Income Country
Creator: Koyeli Sengupta
Duration: 5:58
We assessed the relevance and effectiveness of a telementoring model ECHO Autism in increasing pediatricians' access to best-practice care for children with ASD in Low-Middle Income Countries. Sixty-two physicians across two cohorts (2019-20) participated in the mixed-methods study. We found that participants considered the practices inherent in the ECHO Autism model like reflective discussions, respectful mentoring, having a parent as "expert" as novel, yet beneficial. We also found that participation improved physicians' knowledge, self-efficacy and practice-behaviors in ASD diagnosis and management. We propose ECHO Autism using local ASD experts, as a feasible model for enhancing best-practise ASD care in LMICs.
Play Video |
Video Abstract: Telehealth evaluation of pediatric neurodevelopmental disabilities during the COVID-19 pandemic: Clinician and caregiver perspectives
Creator: Rebecca McNally Keehn
Duration: 5:38
In this video abstract, we present clinician and caregiver perspectives regarding telehealth neurodevelopmental evaluation delivered at the onset of the COVID-19 pandemic. Specifically, we describe telehealth neurodevelopmental evaluations, examine associations between child characteristics and diagnostic factors, determine the impact of technology and family barriers, and report on clinician and caregiver satisfaction with telehealth evaluation. Our findings suggest that telehealth holds significant promise for neurodevelopmental assessment both within the context of a global pandemic and beyond.
Play Video |
Video Abstract: Time to Diagnosis of Autism Spectrum Disorders in Children with Coexisting Developmental Behavioral Disorders
Creator: Deanna Lau
Duration: 4:29
A diagnosis of ASD may be reliably made by 24 months old, yet the average age of ASD diagnosis is 4 years, 4 months old. Literature suggests that children with ASD have high rates of coexisting developmental behavioral disorders. Using nationally representative data from the 2011 Survey of Pathways to Diagnosis and Services, we investigated whether receiving a diagnosis of an alternate developmental behavioral disorder before ASD is associated with delays in ASD diagnosis following parental report of concern to healthcare professionals.
Play Video |
Video Abstract: Early Care and Education, and Its Association with High School Graduation: A 20-Year Longitudinal Population-Based Study
Creator: Talia Losier, Sylvana M Côté
Duration: 03:58
Longitudinal study shows that early center-based childcare and education before school entry is related to higher graduation rates at 20 years. Child care services need to start early and be offered in a structured environment with qualified educators.
Play Video |
Video Abstract: Infant Mental Health Home Visiting Mitigates Impact of Maternal Adverse Childhood Experiences on Toddler Language Competence: A Randomized Controlled Trial
Creator: Jessica L. Riggs, PhD
Duration: 4:54
Young children whose parents experienced childhood adversity are at risk for developmental problems (including social, emotional, and cognitive domains) across the lifespan. Parenting behavior may be a mechanism linking parental adversity and subsequent child language development problems, and is a target for intervention. Utilizing a randomized controlled trial, we demonstrated that a relationship-focused home visiting program, Infant Mental Health Home Visiting (IMH-HV), mitigates impact of maternal ACEs on toddler language. Parental adversity can impact development across generations, but intervention can mitigate this negative effect; IMH-HV and other relational interventions should be available to those at risk.
Play Video |
Video Abstract: Transition from Pediatric to Adult Care for Youth with Chronic Diseases: Youth, Caregiver, and Provider Perceptions
Creator: Vivian W. L. Tsang
Duration: 4:30
This study takes an innovative approach to investigate the needs of young patients as they age out of paediatric care. Specifically, this three-phase mixed-methods study directly includes youth as co-researchers (YCR) from the creation of research objectives and implementation to data evaluation and knowledge translation. Challenges exist with siloed transition programs. It is important that comprehensive community support related to the pre-transition, transfer, and post-transition care of young patients be included in order for transition to be successful; a brilliant pre-transition preparation process is futile if post-transition care is unavailable or inadequate.
Play Video |
Video Abstract: Emotional and Behavioral Problems in Youth with Autism: High Prevalence and Impact on Functioning
Creator: Eric Fombonne
Duration: 9:26
This study, presented by Dr. Eric Fombonne, recruited 1,267 children (472 with autism, 410 with asthma, 385 controls) at several sites. Caregivers completed online standardized measures of psychiatric symptoms, of impairment in child’s functioning, and autism severity. At all ages and in both sexes, caregivers reported significantly much higher rates of psychiatric symptoms, and of impairment levels compared to both comparison groups. Among children with autism, psychiatric problems contributed to impaired functioning as much as autism symptomatology. The study suggests that systematic detection and management of emotional/behavioral problems in youth with autism could substantially improve their functioning and outcome.
Play Video |
Video Abstract: Suicide Risk Screening in Pediatric Outpatient Neurodevelopmental Disabilities Clinics
Creator: Suzanne Rybczynski, MD, MSHCM
Duration: 4:56
Suicide risk screening has been recommended for all ages in order to intervene and prevent suicide deaths through appropriate mental health services. Our study describes suicide risk screening in a neurodevelopmental disabilities and rehabilitation pediatric outpatient setting. It is feasible to implement universal suicide risk screening in youth with neurodevelopmental disabilities in outpatient clinic settings. We found our cohort to have a 6.8% rate of positive screenings similar to rates seen in neuro-typical children. As other healthcare institutions implement universal suicide risk screening, it is important that children with neurodevelopmental disabilities always be included in screening protocols.
Play Video |
Video Abstract: Children’s Attention and Self-Regulatory Behavior before and during the COVID-19 Pandemic
Creator: Radhika Raghunathan
Duration: 5:43
The COVID-19 pandemic has affected emotional and behavioral well-being of children and families. In this study, we investigated changes in children’s self-regulation before and during the onset of the COVID-19 pandemic and the impact of pandemic-related life disruptions on children’s behavior. Families who participated in an intergenerational study up to one year prior to the pandemic were recontacted (April 2020 - August 2020, n = 45, 87% Black). We found that children’s self-regulation decreased pre-pandemic to pandemic, particularly for children experiencing more pandemic-related disruptions. Children whose families have been disproportionately impacted by the pandemic may need focused support in school and at home to avoid widening pre-pandemic health disparities.
Play Video |
Video Abstract: Assessing and Promoting Independence in Young Adults with Autism Spectrum Disorder
Creator: Nancy Cheak-Zamora, Ph.D.
Duration: 3:44
The video details the study, Assessing and Promoting Independence in Young Adults with Autism Spectrum Disorder, including the qualitative methods used in the study, results, and implications.
Play Video |



Video Abstract: Embedding financial services in frequented, trusted settings: Building on families’ preexisting economic mobility efforts
Creator: Savannah Alexander, MPH
Duration: 5:46
Show More 
Show Less 
Child poverty is associated with adverse life course outcomes and disproportionately burdens families of color. Free financial services improve economic and health equity but are underutilized for unknown reasons. As pediatrics begins to embed financial services in clinic and community settings, qualitative research is needed to understand their acceptability and use to improve uptake and effectiveness. We interviewed low-income parents, primarily of color, from an urban community school. We aimed to understand the impact of their experiences around economic mobility on their perceptions of the acceptability and use of financial services embedded in frequented, trusted settings (e.g., schools, clinics).
Play Video |
Video Abstract: Connectome Analysis in an Individual with SETD1B-Related Neurodevelopmental Disorder and Epilepsy
Creator: Rosa Weng
Duration: 4:50
Show More 
Show Less 
Our study reports long-term data of a 24-year-old male with SETD1B-related neurodevelopmental disorder and early-onset epilepsy (with absence and generalized tonic-clonic seizures). He displayed cognitive deficits, autistic features and profound language impairment. A de novo missense variant in SETD1B (c.5699A>G, p.(Tyr1900Cys)), encoding a lysine-specific methyltransferase, was detected by trio exome sequencing. Functional MRI examination revealed a diverging language task activation as well as an aberrant resting-state connectivity of the right precentral gyrus. Taken together, these findings suggest an altered neural basis for language functioning involving the motor system in our patient with SETD1B-related disorder.
Play Video |
Video Abstract: Temper Tantrums in Toddlers and Preschoolers: Longitudinal Associations with Adjustment Problems
Creator: Alithe van den Akker
Duration: 4:54
Show More 
Show Less 
Although temper tantrums are considered a normal part of child development, they are also a symptom of several behavioral and mood disorders. To differentiate normal range temper tantrums from those that may be an early warning sign of problems, we examined how three characteristics (frequency, duration, behavioral profile) were distributed in one- to five-year-old children, and how these predicted adjustment problems a year later. Characteristics differed across ages, different characteristics were predictive of internalizing versus externalizing problems, and children who were characterized by high aggressive and self-injurious behavior appeared especially important to pay attention to.
Play Video |
Video Abstract: Telehealth Utilization and Follow-Up Visits in Developmental Behavioral Pediatrics during the COVID-19 Pandemic in 2020
Creator: Asher Ripp, BS
Duration: 3:56
Show More 
Show Less 
This study delineates the effect of transition to telehealth care on follow-up visit attendance in a developmental-behavioral pediatric (DBP) practice in 2020 versus in-person care in 2019. This retrospective observational cohort study investigated visits in a large DBP practice during a six-week period in 2019 & 2020. Telehealth follow-up visits were more likely to be completed compared to in-person visits, but families with public health insurance had a lower odds of visit completion. Follow-up visit care via telehealth may improve access to DBP care, but additional research should focus on strategies to prevent worsening of disparities of care.
Play Video |
Video Abstract: Toileting Resistance Among Preschool Age Children With and Without Autism Spectrum Disorder.
Creator: Lisa Wiggins
Duration: 4:21
Show More 
Show Less 
Toileting resistance is more common among children with autism (49.1%) than children with other developmental delays (DD; 23.6%) and those from the general population (8.0%). Diarrhea and problems with social awareness were associated with toileting resistance in children with autism and other DD. Constipation, language delays, and low social motivation were associated with toileting resistance only in children with autism; problems recognizing patterns and shapes and oppositional behaviors were associated with toileting resistance in only children with DD. These findings may facilitate discussions between parents and providers about treatments for conditions that may place children at risk for toileting resistance.
Play Video |
Video Abstract: The Use of Person-Centered Language in Scientific Research Articles focused on Autism
Creator: Matt Barnard
Duration: 5:23
Show More 
Show Less 
Drs. Monika Neale, Chelsea Arnhart, and Sara Coffey discuss the importance of using Person-centered language (PCL) within autism research and discuss our research quantifying PCL adherence rates among published articles.
Play Video |
Video Abstract: Physician voices on ECHO Autism India - Evaluation of A Telementoring Model for Autism in a Low-Middle Income Country
Creator: Koyeli Sengupta
Duration: 5:58
Show More 
Show Less 
We assessed the relevance and effectiveness of a telementoring model ECHO Autism in increasing pediatricians' access to best-practice care for children with ASD in Low-Middle Income Countries. Sixty-two physicians across two cohorts (2019-20) participated in the mixed-methods study. We found that participants considered the practices inherent in the ECHO Autism model like reflective discussions, respectful mentoring, having a parent as "expert" as novel, yet beneficial. We also found that participation improved physicians' knowledge, self-efficacy and practice-behaviors in ASD diagnosis and management. We propose ECHO Autism using local ASD experts, as a feasible model for enhancing best-practise ASD care in LMICs.
Play Video |
Video Abstract: Telehealth evaluation of pediatric neurodevelopmental disabilities during the COVID-19 pandemic: Clinician and caregiver perspectives
Creator: Rebecca McNally Keehn
Duration: 5:38
Show More 
Show Less 
In this video abstract, we present clinician and caregiver perspectives regarding telehealth neurodevelopmental evaluation delivered at the onset of the COVID-19 pandemic. Specifically, we describe telehealth neurodevelopmental evaluations, examine associations between child characteristics and diagnostic factors, determine the impact of technology and family barriers, and report on clinician and caregiver satisfaction with telehealth evaluation. Our findings suggest that telehealth holds significant promise for neurodevelopmental assessment both within the context of a global pandemic and beyond.
Play Video |
Video Abstract: Time to Diagnosis of Autism Spectrum Disorders in Children with Coexisting Developmental Behavioral Disorders
Creator: Deanna Lau
Duration: 4:29
Show More 
Show Less 
A diagnosis of ASD may be reliably made by 24 months old, yet the average age of ASD diagnosis is 4 years, 4 months old. Literature suggests that children with ASD have high rates of coexisting developmental behavioral disorders. Using nationally representative data from the 2011 Survey of Pathways to Diagnosis and Services, we investigated whether receiving a diagnosis of an alternate developmental behavioral disorder before ASD is associated with delays in ASD diagnosis following parental report of concern to healthcare professionals.
Play Video |
Video Abstract: Early Care and Education, and Its Association with High School Graduation: A 20-Year Longitudinal Population-Based Study
Creator: Talia Losier, Sylvana M Côté
Duration: 03:58
Show More 
Show Less 
Longitudinal study shows that early center-based childcare and education before school entry is related to higher graduation rates at 20 years. Child care services need to start early and be offered in a structured environment with qualified educators.
Play Video |
Video Abstract: Emotional and Behavioral Problems in Youth with Autism: High Prevalence and Impact on Functioning
Creator: Eric Fombonne
Duration: 9:26
Show More 
Show Less 
This study, presented by Dr. Eric Fombonne, recruited 1,267 children (472 with autism, 410 with asthma, 385 controls) at several sites. Caregivers completed online standardized measures of psychiatric symptoms, of impairment in child’s functioning, and autism severity. At all ages and in both sexes, caregivers reported significantly much higher rates of psychiatric symptoms, and of impairment levels compared to both comparison groups. Among children with autism, psychiatric problems contributed to impaired functioning as much as autism symptomatology. The study suggests that systematic detection and management of emotional/behavioral problems in youth with autism could substantially improve their functioning and outcome.
Play Video |
Video Abstract: Suicide Risk Screening in Pediatric Outpatient Neurodevelopmental Disabilities Clinics
Creator: Suzanne Rybczynski, MD, MSHCM
Duration: 4:56
Show More 
Show Less 
Suicide risk screening has been recommended for all ages in order to intervene and prevent suicide deaths through appropriate mental health services. Our study describes suicide risk screening in a neurodevelopmental disabilities and rehabilitation pediatric outpatient setting. It is feasible to implement universal suicide risk screening in youth with neurodevelopmental disabilities in outpatient clinic settings. We found our cohort to have a 6.8% rate of positive screenings similar to rates seen in neuro-typical children. As other healthcare institutions implement universal suicide risk screening, it is important that children with neurodevelopmental disabilities always be included in screening protocols.
Play Video |
Video Abstract: Children’s Attention and Self-Regulatory Behavior before and during the COVID-19 Pandemic
Creator: Radhika Raghunathan
Duration: 5:43
Show More 
Show Less 
The COVID-19 pandemic has affected emotional and behavioral well-being of children and families. In this study, we investigated changes in children’s self-regulation before and during the onset of the COVID-19 pandemic and the impact of pandemic-related life disruptions on children’s behavior. Families who participated in an intergenerational study up to one year prior to the pandemic were recontacted (April 2020 - August 2020, n = 45, 87% Black). We found that children’s self-regulation decreased pre-pandemic to pandemic, particularly for children experiencing more pandemic-related disruptions. Children whose families have been disproportionately impacted by the pandemic may need focused support in school and at home to avoid widening pre-pandemic health disparities.
Play Video |
Video Abstract: Assessing and Promoting Independence in Young Adults with Autism Spectrum Disorder
Creator: Nancy Cheak-Zamora, Ph.D.
Duration: 3:44
Show More 
Show Less 
The video details the study, Assessing and Promoting Independence in Young Adults with Autism Spectrum Disorder, including the qualitative methods used in the study, results, and implications.
Play Video |
Video Abstract: Symptoms of Pediatric Feeding Disorders Among Individuals with 3q29 Deletion Syndrome: A Case Control Study
Creator: Addam J Wawrzonek
Duration: 5:35
Show More 
Show Less 
The present study evaluated symptoms of pediatric feeding disorder in a sample of individuals with 3q29 Deletion Syndrome. Previous research has found that individuals with 3q29 deletion syndrome (3q29Del) may experience elevated feeding concerns in early childhood; however, the specificity of these feeding concerns is not well understood. Results suggest individuals with 3q29Del experience increased symptoms of pediatric feeding disorders that may require targeted evaluation and intervention for optimal outcomes.
Play Video |
Video Abstract: Bullying Victimization and Perpetration among U.S. Children with and without Tourette Syndr
Creator: Sana Charania
Duration: 3:48
Show More 
Show Less 
Researchers from the Centers for Disease Control and Prevention (CDC) and the Health Resources and Services Administration (HRSA) used parent-reported, nationally representative data to understand the prevalence of Tourette syndrome, co-occurring disorders, and bullying involvement. The findings showed that 1 in 333 children was diagnosed with Tourette syndrome. More than 80% had other mental, behavioral, or developmental disorders. More than half of children with Tourette syndrome were victims of bullying. About 20% were also perpetrators of bullying; most of these perpetrators were also victims of bullying. Parents, teachers, and healthcare providers can ensure that children receive the right support.
Play Video |
Video Abstract: Children with Cerebral Palsy and Unmet Need for Care Coordination
Creator: Myriam Casseus
Duration: 4:35
Show More 
Show Less 
We analyzed multi-year data from the National Survey of Children's Health to determine the prevalence and correlates of unmet need for health care coordination among children with cerebral palsy (CP). We also examined the physical and functional health of children with CP. Results indicate that more than half of children with CP had unmet need for care coordination. They also had higher odds of unmet need for care coordination than children without CP and significantly higher prevalence of comorbid conditions and functional disabilities. Our study supports the need to ensure that all children with CP have effective care coordination.
Play Video |
Video Abstract: Unique Associations between Specific Attention Deficit/Hyperactivity Disorder Symptoms and Related Functional Impairments
Creator: Allison Zoromski, PhD
Duration: 4:22
Show More 
Show Less 
To explore the relationship between ADHD symptoms and impairments we did a retrospective analysis of parent and teacher ratings of symptoms and impairment from the Vanderbilt Rating Scales using a national sample of children between the ages of 5-12. Overall, our findings showed a pattern in which specific ADHD symptoms are associated with specific areas of ADHD-related impairment and this pattern converged across parent- and teacher-ratings.
Play Video |
Video Abstract: Associations Between Participation in After-School Activities, Attention-Deficit/Hyperactivity Disorder Severity and School Functioning
Creator: Yonit Lax
Duration: 5:18
Show More 
Show Less 
This video describes a cross-sectional study using data from the 2016 National Survey of Children’s Health on ADHD severity, after-school activities (ASA), and two domains of school functioning among children with ADHD: missed days from school and calls home from school. This study found that ASA participation is associated with decreased ADHD severity and reduced school absenteeism. Efforts to optimize ADHD outcomes should consider engaging children and adolescents in ASA.
Play Video |
Video Abstract: Parents’ Perceptions of Infants’ Nighttime Sleep Patterns Predicts Mothers’ Negativity: A Longitudinal Study
Creator: Dana Vertsberger
Duration: 3:26
Show More 
Show Less 
Infants’ sleeping patterns can influence parents’ sleep and their well-being. Infants’ sleeping problems can evoke negative emotions from their parents, due to the influence it has on parents’ lives. In a longitudinal design, we followed infants and their parents from 9 to 18 months. Children’s sleeping problems at 9 months predicted an increase in mothers’ (but not fathers’) negativity at 18 months. Parents’ negativity was not associated with infants’ sleep problems.
Play Video |
Video Abstract: Socioeconomic factors account for variability in language skills in preschoolers with autism spectrum disorders
Creator: Lindsay Olson
Duration: 4:49
Show More 
Show Less 
Video DescriptionNote: This description is indexed by the journal search engine, please be as descriptive as possible; can accept HTML if sponsor wants to place a logo or image file Socioeconomic factors account for variability in language skills in preschoolers with autism spectrum disorders
Play Video |
Video Abstract: Intergenerational Effects of Maternal Childhood Experiences on Maternal Parenting and Infant Developmental Progress
Creator: Jesse L. Coe
Duration: 4:27
Show More 
Show Less 
This study evaluated the intergenerational indirect effects of maternal childhood experiences on infant development through maternal scaffolding behaviors. Participants included 295 low-income mothers and their infants who were assessed prenatally and at 6 and 12 months postpartum. Results indicated that mothers who perceived their own mothers as highly supportive in childhood were more likely to engage in scaffolding behaviors with their infants, who in turn made greater developmental progress (e.g., showed less risk for developmental delay) at 12 months postpartum. Maternal adverse childhood experiences (ACEs) were not associated with parenting or infant developmental progress.
Play Video |
Video Abstract: Movement-Based Mindfulness Training for Children with ADHD: A Feasibility Study
Creator: Rachel Morgan and Linda Prudente
Duration: 4:30
Show More 
Show Less 
School-age children with ADHD participated in an 8-week after-school Tai-Chi that showed robust reductions in core ADHD symptoms of hyperactivity, impulsivity, and inattention after the mindful movement training. Reductions were also seen in associated features including emotion dysregulation and symptoms of ODD. These children also showed robust improvements on an objective assessment of developmental motor control, and these objective improvements in motor control were significantly associated with improvements in subjective parent ratings of ADHD behavior. This suggests that motor control may be a biomarker that could be targeted by the mindful movement intervention to improve behavior in children with ADHD.
Play Video |
Video Abstract: Problematic Child Mealtime Behavior and Caregiver Mobile Phone Use
Creator: Libby Matile Milkovich
Duration: 3:08
Show More 
Show Less 
Phones interrupt in-person interactions. Problematic phone users likely have increased interruptions due to their addiction-like behaviors towards their phones. Child behavior can reflect the quality of in-person, caregiver-child interactions. To explore child behavior and caregiver problematic phone use, we surveyed caregivers of children about their problematic phone use and their perception of their child’s mealtime behavior. Higher ratings of child problematic mealtime behavior were associated with higher symptoms of caregiver problematic phone use. Although the study does not show causality, caregiver-child interactions are bidirectional thus possibly allowing for future child problematic behavioral interventions to address caregiver problematic phone use.
Play Video |
Video Abstract: Caring For A Child With Phenylketonuria: Parental Experiences From A Eurasian Country
Creator: Pinar Zengin Akkus
Duration: 4:06
Show More 
Show Less 
Management of phenylketonuria (PKU) was reported to be time consuming and burdensome for caregivers. This study explored the experiences of families caring for a child with phenylketonuria/mild hyperphenylalaninemia in a country with a high PKU rate. Moreover, the factors associated with parental psychological well-being were highlighted. Read the article.
Play Video |
Video Abstract: Health and Neurodevelopment of Children Born to Opioid Dependent Mothers at School Entry
Creator: Rob Stowell, University of Canterbury
Duration: 2:54
Show More 
Show Less 
Children born to opioid-dependent mothers are at high risk for poor growth and neonatal withdrawal, but little is known about their longer term outcomes. We examined the health and neurodevelopmental outcomes of a cohort of 100 children born to opioid dependent mothers during pregnancy. These mothers and children were followed prospectively from pregnancy to age 4.5 years alongside a comparison group of 110 randomly identified non-methadone-exposed children and their mothers. Findings highlight the complex developmental needs of these children. The risk of later problems was higher for male children born to higher social risk mothers who used more licit and illicit substances during pregnancy and when children were raised in lower quality home environments. Read the article.
Play Video |
Video Abstract: Infant, Maternal and Neighborhood Predictors of Maternal Psychological Distress at Birth and over VLBW Infants’ First Year of Life
Creator: Michelle Greene
Duration: 4:25
Show More 
Show Less 
Mothers of very low birth weight infants (VLBW, birth weight less than 3 pounds, 5 ounces) experience maternal psychological distress, defined as depression, anxiety and perinatal post-traumatic stress (PPTS).This study estimated maternal distress at time of VLBW infants' birth, modeled change in distress over VLBW infants' first year of life, and examined predictors of distress. Distress declined over VLBW infants' first year of life. Mothers residing in lower income environments had lower PPTS and anxiety at VLBW infant birth. VLBW birth weight and maternal age, respectively, predicted change in anxiety over time, and change in depression over time. Read the article.
Play Video |
Video Abstract: Quantitative evaluation of content and age concordance across developmental milestone checklists
Creator: M. Jackson Wilkinson and Carol L. Wilkinson
Duration: 3:45
Show More 
Show Less 
Primary care providers and parents rely on developmental milestone checklists as tools for tracking a child’s development. However, there are multiple published milestone checklists that vary in their structure and content. Our team systematically evaluated the consistency and variability between four commonly used milestone checklists. We found that there was limited overlap in the content across these four checklists. In addition, the milestones shared across checklists were inconsistent in their estimated ages of when milestones should occur. Our findings highlight the need for objectively defined and accurately normed developmental milestones. Read the article.
Play Video |
Video Abstract: The Legacy for Children™ randomized control trial: Effects on cognition through third grade for young children experiencing poverty
Creator: U.S. Centers for Disease Control and Prevention (CDC)
Duration: 5:28
Show More 
Show Less 
Researchers conducted a multi-site, randomized controlled trial to examine the impact of the Legacy for Children program on child health and development. Results revealed Legacy has a positive impact on child emotional and behavioral outcomes, child IQ, and mother-child interactions. Read the article.
Play Video |
Video Abstract: Associations Between Household Chores and Childhood Self-Competency
Creator: Dr. Elizabeth White, Dr. Rebecca Scharf, and Stephanie Fielding
Duration: 3:39
Show More 
Show Less 
We analyzed data from 9,971 children who participated in the Early Childhood Longitudinal Study-Kindergarten: 2011, a nationally representative cohort of children entering kindergarten in the United States in 2010-2011. We examined the longitudinal relationships between performing chores in kindergarten and child perceived self-competence measures and academic outcomes in the third grade. Our study is unique in that we looked at how early childhood chores relate to development from a child’s own perspective. Performing chores in early elementary school was associated with later development of self-competence, pro-social behavior, and self-efficacy. Read the article.
Play Video |
Video Abstract: Mobile media device use is associated with expressive language delay in 18-month-old children
Creator: Andrej Kopac
Duration: 5:47
Show More 
Show Less 
Increased television viewing is associated with language delays in early childhood Unlike traditional screen time, mobile media devices offer the opportunity to interact with the interface. Studies examining the relationship between mobile media device use and developmental outcomes including communication outcomes in young children are lacking. The objective of our study was to examine the association between mobile media device use and communication delays in 18-month-old children. Read the article.
Play Video |
Video Abstract: Advertising in young children’s apps: A content analysis
Creator: Jenny Radesky
Duration: 3:53
Show More 
Show Less 
Dr. Jenny Radesky and Marisa Meyer discuss their article, Advertising in Children's Apps: A Content Analysis, with sample screen shots illustrating their findings. Read the article.
Play Video |
Video Abstract: Effects of Childhood Life Events on Adjustment Problems in Adolescence: A Longitudinal Study
Creator: Helen Koechlin, Carolina Donado, Joe Kossowsky
Duration: 5:16
Show More 
Show Less 
In our article, we examined data collected by the National Institute of Child Health and Development for the Study of Early Child Care and Youth Development. This longitudinal cohort followed more than 1,000 children and their families from the child’s birth until the age of 15. Our findings highlight the importance of the context within which a child grows up: not only the family context and the mental health of parents, but also the peer context and friendships are important influences that help decide whether a child develops adjustment problems or not in the face of stressful life events. Read the article.
Play Video |
Video Abstract: Risk and Protective Factors for Externalizing Behavior at Three Years: Results from the All Our Families (AOF) pregnancy cohort
Creator: Suzanne Tough
Duration: 3:00
Show More 
Show Less 
This study examines risk and protective factors associated with externalizing behavior among 1300 children. We found that moms who faced more mental health challenges when their children were two were more likely to report that their children had externalizing behaviors at age three. Children in daycare, or whose moms participated in community activities, such as story time at the library, were less likely to report externalizing behavior in their children. Opportunities for children to practice their self-regulation skills through structured interactions with same age peers can enhance school readiness and should be made accessible to all families. Read the article.
Play Video |
Video Abstract: Characteristics of treatment decisions to address challenging behaviors in children with autism spectrum disorder (ASD)
Creator: Cincinnati Children’s Hospital Medical Center
Duration: 4:12
Show More 
Show Less 
Lead author, Julia Anixt, MD presents findings from a research study evaluating the types of challenging behaviors parents of children with autism spectrum disorder (ASD) prioritize for treatment during Developmental Behavioral Pediatric (DBP) clinic visits. This study explores how much shared decision making (SDM) occurs during “usual care” DBP clinic visits, how often parent priorities are addressed in the treatment plan, and how often parents feel uncertain about the decision of whether to use medication to treat their children’s challenging behaviors. Read the article.
Play Video |
Video Abstract: Parental Perception of Flourishing in School-Aged Children: 2011-2012 National Survey of Children's Health
Creator: Veni Kandasamy; Krysten Carrera (HRSA's Maternal and Child Health Bureau); Milton Thomas (HRSA's Office of the Administrator)
Duration: 2:34
Show More 
Show Less 
This is a video abstract for the Parental Perception of Flourishing in School-Aged Children: 2011-2012 National Survey of Children's Health manuscript. We discuss what flourishing in children is and its importance. We also discuss our data source, HRSA's National Survey of Children's Health. Our study findings that approximately half of school-aged children were found to be flourishing and that differences by sociodemographic factors in the likelihood of flourishing were reduced with the inclusion of environmental factors are also described. We close with next steps and areas for further study in flourishing. Read the article.
Play Video |
Video Abstract: The impact of Tourette syndrome on school measures in a nationally representative sample
Creator: U.S. Centers for Disease Control and Prevention (CDC)
Duration: 4:18
Show More 
Show Less 
Researchers from the Centers for Disease Control and Prevention (CDC) used parent-reported data from national studies in 2007 and 2011 to understand how having Tourette syndrome and other conditions affect how children do in school, like repeating a grade, school problems, or needing special services. Having other conditions along with Tourette Syndrome was related to having difficulty in school and needing educational services. This is important information for healthcare providers, teachers and parents. Being aware of the potential challenges related to both Tourette syndrome and other conditions can help them to best support the child’s education. For further information on CDC’s research in this area, visit: www.cdc.gov/tourette.Read the article.
Play Video |
Video Abstract: Preliminary Evaluation of a Brief Autism Screener for Young Children
Creator: Walter Zahorodny and Justin Smith
Duration: 8:21
Show More 
Show Less 
This video is a brief summary of the article, "Preliminary Evaluation of a Brief Autism Screener for Young Children." It provides the reasons for undertaking development of a new parent report tool and describes the methodology and initial data assessing the usefulness of the PDQ-1, a brief Autism screener for toddler-age children. Click here to read the article.
Play Video |
Video Abstract: A National Profile of ADHD Diagnosis and Treatment among U.S. Children Aged 2-5 Years
Creator: U.S. Centers for Disease Control and Prevention (CDC)
Duration: 5:51
Show More 
Show Less 
Attention Deficit Hyperactivity Disorder (ADHD) U.S. Centers for Disease Control and Prevention (CDC). Clinical guidelines provide recommendations for diagnosis and treatment of attention-deficit/hyperactivity disorder (ADHD), with specific guidance on caring for children younger than 6 years. This exploratory study describes ADHD diagnosis and treatment patterns among young children in the U.S. using two nationally representative parent surveys. Click here to read the article.
Play Video |
Video Abstract: Perceived Maternal Behavioral Control, Infant Behavior and Milk Supply: A Qualitative Study
Creator: Clinton Vadnais, Media Specialist, Baystate Medical Center
Duration: 4:38
Show More 
Show Less 
We describe a qualitative study of breastfeeding women designed to better understand the decision-making process women undergo regarding infant feeding over time. We conducted interviews at 2 weeks and follow-up interviews at 6 months postpartum. We used the Theory of Planned Behavior (TPB) as a framework for understanding the decision-making process. We found that themes related to perceived insufficient milk supply were strongly related to the perceived behavioral control component of the TPB and that these themes evolved over time. We discuss the clinical implications of these findings with respect to promotion of exclusive breastfeeding and maternal perceptions of control. Click here to read the article.
Play Video |
Video Abstract: The Effects of Prenatal Maternal Stress on Early Temperament: The 2011 Queensland Flood Study
Creator: Mater Research
Duration: 4:47
Show More 
Show Less 
The Queensland Flood Study (QF2011) took advantage of a severe flood in Queensland, Australia to investigate the effects of disaster-related prenatal maternal stress on temperament characteristics at 6-months-old. Results showed that mothers’ subjective stress reactions and cognitive appraisal of the disaster while pregnant were associated with easier aspects of temperament in their infants. However, with higher levels of hardship in pregnancy, boys (but not girls) were rated as more irritable. Higher levels of hardship in early pregnancy also predicted more arrhythmic behavior. Finally, mothers whose emotional response to the flood exceeded the hardship they endured reported more active-reactive infants. Click here to read the article.
Play Video |
Video Abstract: Access to Developmental Pediatrics Evaluations for At-risk Children
Creator: Bill Hamilton- Rutgers Robert Wood Johnson Medical School
Duration: 2:42
Show More 
Show Less 
This video provides a brief summary of the study "Access to Developmental Pediatrics Evaluations for At-risk Children ". Using a "mystery shopper" approach Dr. Jimenez and colleagues identified a national wait time estimate for developmental pediatrics appointments and compared experience and wait times when calls were made in English versus Spanish. Click here to read the article.
Play Video |
Parent mobile device use: The excitement and exhaustion of parenting while connected.
Creator: University of Michigan Health System
Duration: 5:08
Show More 
Show Less 
Dr. Jenny Radesky discusses her qualitative interviews with parents of young children about their mobile device use habits, highlighting the 3 main tensions parents expressed. These included: 1) cognitive tensions, feeling “information overload” and difficulties multitasking between tech and children; 2) emotional tensions, including the feeling that the sometimes “intrusive” nature of mobile media makes it more stress-inducing, but also that they seek it as a way self-regulate when stressed with parenting; 3) dyadic tensions, described as discomfort with how mobile device use during family routines seemed to interrupt moments of connection, but also could act as a peacekeeper.Click here to read the article.
Play Video |
Same-Sex and Different-Sex Parent Households and Child Health Outcomes: Findings from the National Survey of Children’s Health
Creator: Nanette Gartrell, MD and Dee Mosbacher MD PhD
Duration: 4:01
Show More 
Show Less 
Using the 2011-2012 National Survey of Children’s Health dataset, we compared spouse/partner relationships and parent-child relationships (family relationships), parenting stress, and children’s general health, emotional difficulties, coping behavior, and learning behavior (child outcomes) in households of same-sex (female) versus different-sex continuously coupled parents with biological offspring. We assessed whether associations among family relationships, parenting stress, and child outcomes were different in the two household types. We found that children with female same-sex parents and different-sex parents demonstrated no differences in outcomes, despite female same-sex parents reporting more parenting stress. Click here to read the article.
Play Video |