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Video Abstract: Effects of a Care Coordination Intervention with Children with Neurodevelopmental Disabilities and their Families

Video Author: Jeanne W. McAllister, BSN, MS, MHA
Published on: 04.20.2018

This video depicts the rationale for a care coordination intervention using a shared plan of care. It shares an open-ended goal oriented interview with a parent of a child with a developmental disability, reveals how family goals are identified and strategies coproduced to achieve goals. Findings are summarized and recommendations made. Read the article.

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Creator: Jeanne W. McAllister, BSN, MS, MHA
Duration: 10:17
This video depicts the rationale for a care coordination intervention using a shared plan of care. It shares an open-ended goal oriented interview with a parent of a child with a developmental disability, reveals how family goals are identified and strategies coproduced to achieve goals. Findings are summarized and recommendations made. Read the article.
Creator: Sarah Kirsch, David Meryash
Duration: 5:41
Sarah Kirsch, lead author, describes a national study of the determinants of parent satisfaction with emergency or urgent care visits by their children with autism spectrum disorder. The researchers found that the factors most associated with parent satisfaction were indicators of the quality of interpersonal and communication skills of the medical and non-medical staff of the facility at which the patients were treated. These were more important, for example, than patient traits, reason for visit, or whether the patient was cooperative. The authors emphasize the importance of autism-specific training for emergency department staff to maximizing satisfaction with care. Read the article.
Creator: Dr. Annis Fung, Mr. Toney Lee
Duration: 9:14
Researchers from City University of Hong Kong examined the effectiveness of Chinese martial arts in reducing reactive and proactive aggression among schoolchildren with a longitudinal, placebo-controlled design. The intervention was developed based on the social-information processing model. 298 out of 3,511 schoolchildren were randomly assigned to one of four training conditions (Skills-and-Philosophy condition, Skills-only condition, Philosophy-only condition, Physical Fitness condition). Only the combined Skills-and-Philosophy condition showed a significant reduction in self-ratings of reactive and proactive aggression, delinquent behavior, anxious/depressed problems, and attention problems at post-test and/or 6-month follow-up. This provides important information for helping professionals to design non-labelling and effective intervention for high-risk schoolchildren to reduce reactive and proactive aggression. Read the article.
Creator: Pascal Burger
Duration: 3:44
We examined how the level and concordance of non-responsive feeding practices between mothers and fathers are associated with child fussy eating in a sample of socioeconomically disadvantaged families. Cohabiting mother-father pairs from the ‘Mums and Dads (MAD) for Mealtimes’ study reported on their non-responsive feeding practices (persuasive feeding, reward for eating and reward for behaviour) and their preschool-aged child’s fussy eating (i.e., picky eating). Less child fussy eating was reported when parents were concordant in avoiding non-responsive feeding practices. Our results highlight the need to use a whole-family approach in research and interventions to address fussy eating. Read the article.
Creator: Cincinnati Children’s Hospital Medical Center
Duration: 4:12
Lead author, Julia Anixt, MD presents findings from a research study evaluating the types of challenging behaviors parents of children with autism spectrum disorder (ASD) prioritize for treatment during Developmental Behavioral Pediatric (DBP) clinic visits. This study explores how much shared decision making (SDM) occurs during “usual care” DBP clinic visits, how often parent priorities are addressed in the treatment plan, and how often parents feel uncertain about the decision of whether to use medication to treat their children’s challenging behaviors. Read the article.
Creator: Veni Kandasamy; Krysten Carrera (HRSA's Maternal and Child Health Bureau); Milton Thomas (HRSA's Office of the Administrator)
Duration: 2:34
This is a video abstract for the Parental Perception of Flourishing in School-Aged Children: 2011-2012 National Survey of Children's Health manuscript. We discuss what flourishing in children is and its importance. We also discuss our data source, HRSA's National Survey of Children's Health. Our study findings that approximately half of school-aged children were found to be flourishing and that differences by sociodemographic factors in the likelihood of flourishing were reduced with the inclusion of environmental factors are also described. We close with next steps and areas for further study in flourishing. Read the article.
Creator: Carol Strong & Meng-Che Tsai
Duration: 5:25
This video is a quick summary of the paper, “Adolescent Internet Use, Social Integration, and Depressive Symptoms: Analysis from a Longitudinal Cohort Survey.” It examined the association between adolescent leisure-time internet use and social connection in the school context, and how this association affects later depressive symptoms among adolescents in Taiwan. The results highlighted the needs for stakeholders of adolescent health to carefully assess adolescents’ social networking and mental well-being. Read the article.
Creator: Jenny Radesky
Duration: 3:16
Jenny Radesky discusses new research on parent mobile device use and parent-child relationships. Her study used the Working Model of the Child Interview (WMCI) to assess maternal mental representations of her child's emotions and experiences, and studied associations with how frequently mothers spontaneously used their mobile devices during videotaped parent-child eating encounters. Read the article.
Creator: U.S. Centers for Disease Control and Prevention (CDC)
Duration: 4:18
Researchers from the Centers for Disease Control and Prevention (CDC) used parent-reported data from national studies in 2007 and 2011 to understand how having Tourette syndrome and other conditions affect how children do in school, like repeating a grade, school problems, or needing special services. Having other conditions along with Tourette Syndrome was related to having difficulty in school and needing educational services. This is important information for healthcare providers, teachers and parents. Being aware of the potential challenges related to both Tourette syndrome and other conditions can help them to best support the child’s education. For further information on CDC’s research in this area, visit: www.cdc.gov/tourette.Read the article.
Creator: Rutgers University
Duration: 5:00
This video discusses results from a study of pediatric residency program training directors across the country. This study was intended to identify perceptions of behavioral health training in pediatric residency programs, degree of involvement from behavioral health providers, and opportunities for/barriers to innovation in training. Despite substantial improvement in residency training in behavioral health over the past decade, additional improvement is needed. Barriers to continued improvement include training content, training methods, support from faculty and administrator stakeholders, and resource issues. Strategies derived from implementation science have the potential to address these barriers. Click here to read the article.
Creator: Seattle Children’s Research Institute
Duration: 6:36
Lead author, Jennifer Gerdts, PhD, discusses the rationale for developing a streamlined and efficient interdisciplinary diagnostic evaluation for autism spectrum disorder (ASD) at Seattle Children’s Autism Center (SCAC). Dr. Gerdts compares diagnostic outcomes, follow-up care rates, provider satisfaction, billed time, and reimbursement amounts in interdisciplinary teams to those of more traditional psychology-led and physician-led models. She also suggests benefits of this diagnostic approach for families of children with ASD. Click here to read the article.
Creator: Walter Zahorodny and Justin Smith
Duration: 8:21
This video is a brief summary of the article, "Preliminary Evaluation of a Brief Autism Screener for Young Children." It provides the reasons for undertaking development of a new parent report tool and describes the methodology and initial data assessing the usefulness of the PDQ-1, a brief Autism screener for toddler-age children. Click here to read the article.
Creator: Louisa Salisbury, MD
Duration: 6:37
Overview of our research, clinical implications and directions for future research. Play Video | + Favorites
Creator: Aleix Cabrera, Barcelona Institute for Global Health (ISGlobal) Video
Duration: 02:43
This study is the first to demonstrate associations between a longer time spent engaging in cognitively stimulating activities and lower scores of both ADHD symptoms and behavior problems, in ADHD-free children at baseline. We also found that sleeping longer was associated with a lower ADHD symptom score. In contrast, time spent watching TV and time spent engaging in physical activity at age 4 years were not associated with ADHD symptoms or behavior problems at age 7 years, nor was there any evidence of interactions between the several exposures considered. Click here to read the article.
Creator: Massachusetts General Hospital
Duration:
In this short video, the article "Use and Nondisclosure of Complementary Health Approaches among US Children with Developmental Disabilities" is summarized. More specifically, the study's objectives, methodology, and key findings are highlighted. Read the article
Creator: University of Maryland
Duration: 3:17
During toddlerhood, children establish regular sleep patterns, with night awakenings followed by returning to sleep without parental intervention. However, some toddlers experience frequent night awakenings and may require parental intervention to return to sleep. Co-sleeping, meaning sharing the same bed or same room, occurs among many families with toddlers. We found that when parents perceive that their toddler has a sleep problem and they co-sleep, mothers lose almost one hour of sleep and report increased symptoms of stress, depression, and anxiety. Practitioners might consider alternatives to co-sleeping when discussing sleep arrangements with parents.Read the article
Creator: University of Maryland School of Pharmacy
Duration: 5:28
The video abstract highlights the significance and innovation of the research on caregiver preferences for outcomes in youth with mental health multimorbidity. Outcomes were identified in partnership with caregivers to include the range of outcome domains beyond clinical factors that are relevant when making treatment decisions. Best-Worst Scaling is a preference elicitation method where caregivers jointly considered multiple attributes related to treatment outcomes and selected the one most important to them, much as they do real life decisions. This work moves beyond a sole focus on disease-specific outcomes, and provides insight into the outcome priorities that influence treatment decisions. Click here to read the article.
Creator: Melissa Bright, Lindsay Thompson
Duration: 3:22
Adverse childhood experiences (ACEs) and physical, mental, and developmental health conditions Video Creator: Christopher Gomez, University of Florida. Read the article
Creator: Megan Narad, Jessica King
Duration:
We report on the rate need for academic services and academic service utilization among a cohort of children who sustained a traumatic brain injury (TBI) between the ages of 3 and 7 years old, as they transitioned to middle school, approximately 6.8 years after injury. Findings show the need for services among students with a history TBI remains high even years after injury. Rates of unmet need were high across all injury groups (46.2%-63.6%), underscoring the importance of continued monitoring of students with a history of TBI, especially children with less severe injuries who are at risk for being underserved. Read the article
Creator: Natacha Akshoomoff, Ph.D.
Duration: 3:56
We analyzed follow-up data at age 10 years from children who participated in the Extremely Low Gestational Age Newborns Study - also known as a the ELGAN study. Complete data were available from 668 children who were born at less than 28 weeks gestation and who did not have intellectual disability at age 10. We found that about 30% of these children had low achievement in math, reading, or both. As predicted, the rate of having a Math Learning Disability was twice as high as having a Reading Learning Disability. The pattern of deficits on neuropsychological tests varied as a function of learning disability type. Click here to read the article.



Creator: Sarah Kirsch, David Meryash
Duration: 5:41
Sarah Kirsch, lead author, describes a national study of the determinants of parent satisfaction with emergency or urgent care visits by their children with autism spectrum disorder. The researchers found that the factors most associated with parent satisfaction were indicators of the quality of interpersonal and communication skills of the medical and non-medical staff of the facility at which the patients were treated. These were more important, for example, than patient traits, reason for visit, or whether the patient was cooperative. The authors emphasize the importance of autism-specific training for emergency department staff to maximizing satisfaction with care. Read the article.
Creator: Dr. Annis Fung, Mr. Toney Lee
Duration: 9:14
Researchers from City University of Hong Kong examined the effectiveness of Chinese martial arts in reducing reactive and proactive aggression among schoolchildren with a longitudinal, placebo-controlled design. The intervention was developed based on the social-information processing model. 298 out of 3,511 schoolchildren were randomly assigned to one of four training conditions (Skills-and-Philosophy condition, Skills-only condition, Philosophy-only condition, Physical Fitness condition). Only the combined Skills-and-Philosophy condition showed a significant reduction in self-ratings of reactive and proactive aggression, delinquent behavior, anxious/depressed problems, and attention problems at post-test and/or 6-month follow-up. This provides important information for helping professionals to design non-labelling and effective intervention for high-risk schoolchildren to reduce reactive and proactive aggression. Read the article.
Creator: Pascal Burger
Duration: 3:44
We examined how the level and concordance of non-responsive feeding practices between mothers and fathers are associated with child fussy eating in a sample of socioeconomically disadvantaged families. Cohabiting mother-father pairs from the ‘Mums and Dads (MAD) for Mealtimes’ study reported on their non-responsive feeding practices (persuasive feeding, reward for eating and reward for behaviour) and their preschool-aged child’s fussy eating (i.e., picky eating). Less child fussy eating was reported when parents were concordant in avoiding non-responsive feeding practices. Our results highlight the need to use a whole-family approach in research and interventions to address fussy eating. Read the article.
Creator: Cincinnati Children’s Hospital Medical Center
Duration: 4:12
Lead author, Julia Anixt, MD presents findings from a research study evaluating the types of challenging behaviors parents of children with autism spectrum disorder (ASD) prioritize for treatment during Developmental Behavioral Pediatric (DBP) clinic visits. This study explores how much shared decision making (SDM) occurs during “usual care” DBP clinic visits, how often parent priorities are addressed in the treatment plan, and how often parents feel uncertain about the decision of whether to use medication to treat their children’s challenging behaviors. Read the article.
Creator: Veni Kandasamy; Krysten Carrera (HRSA's Maternal and Child Health Bureau); Milton Thomas (HRSA's Office of the Administrator)
Duration: 2:34
This is a video abstract for the Parental Perception of Flourishing in School-Aged Children: 2011-2012 National Survey of Children's Health manuscript. We discuss what flourishing in children is and its importance. We also discuss our data source, HRSA's National Survey of Children's Health. Our study findings that approximately half of school-aged children were found to be flourishing and that differences by sociodemographic factors in the likelihood of flourishing were reduced with the inclusion of environmental factors are also described. We close with next steps and areas for further study in flourishing. Read the article.
Creator: Carol Strong & Meng-Che Tsai
Duration: 5:25
This video is a quick summary of the paper, “Adolescent Internet Use, Social Integration, and Depressive Symptoms: Analysis from a Longitudinal Cohort Survey.” It examined the association between adolescent leisure-time internet use and social connection in the school context, and how this association affects later depressive symptoms among adolescents in Taiwan. The results highlighted the needs for stakeholders of adolescent health to carefully assess adolescents’ social networking and mental well-being. Read the article.
Creator: Jenny Radesky
Duration: 3:16
Jenny Radesky discusses new research on parent mobile device use and parent-child relationships. Her study used the Working Model of the Child Interview (WMCI) to assess maternal mental representations of her child's emotions and experiences, and studied associations with how frequently mothers spontaneously used their mobile devices during videotaped parent-child eating encounters. Read the article.
Creator: U.S. Centers for Disease Control and Prevention (CDC)
Duration: 4:18
Researchers from the Centers for Disease Control and Prevention (CDC) used parent-reported data from national studies in 2007 and 2011 to understand how having Tourette syndrome and other conditions affect how children do in school, like repeating a grade, school problems, or needing special services. Having other conditions along with Tourette Syndrome was related to having difficulty in school and needing educational services. This is important information for healthcare providers, teachers and parents. Being aware of the potential challenges related to both Tourette syndrome and other conditions can help them to best support the child’s education. For further information on CDC’s research in this area, visit: www.cdc.gov/tourette.Read the article.
Creator: Rutgers University
Duration: 5:00
This video discusses results from a study of pediatric residency program training directors across the country. This study was intended to identify perceptions of behavioral health training in pediatric residency programs, degree of involvement from behavioral health providers, and opportunities for/barriers to innovation in training. Despite substantial improvement in residency training in behavioral health over the past decade, additional improvement is needed. Barriers to continued improvement include training content, training methods, support from faculty and administrator stakeholders, and resource issues. Strategies derived from implementation science have the potential to address these barriers. Click here to read the article.
Creator: Seattle Children’s Research Institute
Duration: 6:36
Lead author, Jennifer Gerdts, PhD, discusses the rationale for developing a streamlined and efficient interdisciplinary diagnostic evaluation for autism spectrum disorder (ASD) at Seattle Children’s Autism Center (SCAC). Dr. Gerdts compares diagnostic outcomes, follow-up care rates, provider satisfaction, billed time, and reimbursement amounts in interdisciplinary teams to those of more traditional psychology-led and physician-led models. She also suggests benefits of this diagnostic approach for families of children with ASD. Click here to read the article.
Creator: Walter Zahorodny and Justin Smith
Duration: 8:21
This video is a brief summary of the article, "Preliminary Evaluation of a Brief Autism Screener for Young Children." It provides the reasons for undertaking development of a new parent report tool and describes the methodology and initial data assessing the usefulness of the PDQ-1, a brief Autism screener for toddler-age children. Click here to read the article.
Creator: University of Maryland
Duration: 3:17
During toddlerhood, children establish regular sleep patterns, with night awakenings followed by returning to sleep without parental intervention. However, some toddlers experience frequent night awakenings and may require parental intervention to return to sleep. Co-sleeping, meaning sharing the same bed or same room, occurs among many families with toddlers. We found that when parents perceive that their toddler has a sleep problem and they co-sleep, mothers lose almost one hour of sleep and report increased symptoms of stress, depression, and anxiety. Practitioners might consider alternatives to co-sleeping when discussing sleep arrangements with parents.Read the article
Creator: Melissa Bright, Lindsay Thompson
Duration: 3:22
Adverse childhood experiences (ACEs) and physical, mental, and developmental health conditions Video Creator: Christopher Gomez, University of Florida. Read the article
Creator: Megan Narad, Jessica King
Duration:
We report on the rate need for academic services and academic service utilization among a cohort of children who sustained a traumatic brain injury (TBI) between the ages of 3 and 7 years old, as they transitioned to middle school, approximately 6.8 years after injury. Findings show the need for services among students with a history TBI remains high even years after injury. Rates of unmet need were high across all injury groups (46.2%-63.6%), underscoring the importance of continued monitoring of students with a history of TBI, especially children with less severe injuries who are at risk for being underserved. Read the article
Creator: C. Thomas Lewis, IUPUI School of Informatics and Computing
Duration: 5:13
Attention deficit hyperactivity disorder (ADHD) is commonly encountered in primary care practice. Group visits are an alternate way to provide chronic care management while attending to the needs of families. This study examines the acceptability of group visits for ADHD care from the perspectives of caregivers, children and providers and lessons learned in using the group visits across two studies. A brief description of our ADHD group visit model, TEACH-Tailoring Education for ADHD and Children’s Health, is reviewed. Findings suggest that stakeholders find group visits acceptable and increased in satisfaction in ADHD care. Click here to read the article.
Creator: Wilko Duprez
Duration: 4:51
This longitudinal study assessed the intellectual, academic and executive functioning skills of children diagnosed with ADHD at diagnosis and four years later. Intellectual function was stable over the four-year interval. Reliable change analyses highlighted variability in academic performance, with half the children showing performance declines in at least one academic subject. Executive functions followed a generally stable or improving course. There was some evidence of better neurocognitive performance in those with partial symptom remission at follow up, however early cognitive functioning did not predict symptom outcome over time. Findings emphasize the importance of monitoring academic performance in children with ADHD. Click here to read the article.
Creator: U.S. Centers for Disease Control and Prevention (CDC)
Duration: 5:51
Attention Deficit Hyperactivity Disorder (ADHD) U.S. Centers for Disease Control and Prevention (CDC). Clinical guidelines provide recommendations for diagnosis and treatment of attention-deficit/hyperactivity disorder (ADHD), with specific guidance on caring for children younger than 6 years. This exploratory study describes ADHD diagnosis and treatment patterns among young children in the U.S. using two nationally representative parent surveys. Click here to read the article.
Creator: Luke Walton & Tugce Bilgin
Duration: 4:58
We report on the findings of a longitudinal study that followed very preterm/very low birth weight and full-term mother-infant dyads from birth to 18 months. We assessed both infant feeding problems and maternal sensitive parenting at term, 3 and 18 months and examined the direction of the associations between both. Results showed that the association between maternal sensitivity and feeding problems differed in very preterm and full-term mother-infant dyads. In full-term infants, there was a reciprocal association from 3 to 18 months; while in very preterm infants, higher feeding problems decreased maternal sensitivity over time. Click here to read the article.
Creator: Corinna Jenkins Tucker, Ph.D., C.F.L.E.
Duration: 5:25
This video is a brief summary of the paper, “Victimization by Siblings in Children with Disability or Weight Problems”. Using a national probability sample and controlling for other forms of maltreatment and individual and family characteristics, analyses showed that children with a physical disability and parent-perceived children who are thinner than average and children who are overweight experienced more sibling victimization. Children with an internalizing disorder experienced less sibling victimization. This the first study to highlight the importance of screening for sibling victimization in families of children with a disability and/or non-normative weight status. Click here to read the article.
Creator: Mater Research
Duration: 4:47
The Queensland Flood Study (QF2011) took advantage of a severe flood in Queensland, Australia to investigate the effects of disaster-related prenatal maternal stress on temperament characteristics at 6-months-old. Results showed that mothers’ subjective stress reactions and cognitive appraisal of the disaster while pregnant were associated with easier aspects of temperament in their infants. However, with higher levels of hardship in pregnancy, boys (but not girls) were rated as more irritable. Higher levels of hardship in early pregnancy also predicted more arrhythmic behavior. Finally, mothers whose emotional response to the flood exceeded the hardship they endured reported more active-reactive infants. Click here to read the article.
Creator: Elise Fallucco, MD
Duration: 4:35
This video is a brief summary of the study, "The Brief Early Childhood Screening Assessment: Preliminary Validity in Pediatric Primary Care". It describes the importance of early identification of behavioral and emotional problems in young children, and highlights the development and validation of the Brief ECSA which is a screening instrument used to identify these problems. Click here to read the article.
Creator: University of Michigan Health System
Duration: 5:08
Dr. Jenny Radesky discusses her qualitative interviews with parents of young children about their mobile device use habits, highlighting the 3 main tensions parents expressed. These included: 1) cognitive tensions, feeling “information overload” and difficulties multitasking between tech and children; 2) emotional tensions, including the feeling that the sometimes “intrusive” nature of mobile media makes it more stress-inducing, but also that they seek it as a way self-regulate when stressed with parenting; 3) dyadic tensions, described as discomfort with how mobile device use during family routines seemed to interrupt moments of connection, but also could act as a peacekeeper.Click here to read the article.
Creator: Piyush Borse, TRIP Lab
Duration: 3:18
Motor vehicle collisions (MVCs) are one of the leading causes of injury and death for adolescents. Driving is a complex activity that is highly reliant on executive function to safely navigate the environment. This study was among the first to utilize the Behavior Rating Inventory of Executive Function (BRIEF) as a potential predictor of problematic adolescent driving outcomes. Self-reported difficulties with planning and organization were associated with greater odds of having a MVC whereas inhibition difficulties were associated with greater odds of receiving a ticket. The BRIEF could offer unique and quick insight into problematic driving behavior during clinical evaluations. Click here to read the article.
Creator: Nanette Gartrell, MD and Dee Mosbacher MD PhD
Duration: 4:01
Using the 2011-2012 National Survey of Children’s Health dataset, we compared spouse/partner relationships and parent-child relationships (family relationships), parenting stress, and children’s general health, emotional difficulties, coping behavior, and learning behavior (child outcomes) in households of same-sex (female) versus different-sex continuously coupled parents with biological offspring. We assessed whether associations among family relationships, parenting stress, and child outcomes were different in the two household types. We found that children with female same-sex parents and different-sex parents demonstrated no differences in outcomes, despite female same-sex parents reporting more parenting stress. Click here to read the article.
Creator: Deborah Christensen, PhD
Duration: 5:58
Population-based autism spectrum disorder (ASD) surveillance among 4-year old children provides valuable information about the early identification of children with ASD and suggests progression toward lowering the age of first ASD evaluation within participating Autism and Developmental Disabilities Monitoring communities. Click here to read the article.