Assessing and Promoting Independence in Young Adults with Autism Spectrum Disorder : Journal of Developmental & Behavioral Pediatrics

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Original Article

Assessing and Promoting Independence in Young Adults with Autism Spectrum Disorder

Cheak-Zamora, Nancy PhD*; Tait, Andrew BS; Coleman, Ann BA*

Author Information
Journal of Developmental & Behavioral Pediatrics 43(3):p 130-139, April 2022. | DOI: 10.1097/DBP.0000000000001021

Abstract

Objective: 

Quality of life, independence, and employment outcomes are poor for young adults with autism spectrum disorder (YA-ASD). This study explored the desires and experiences of YA-ASD as they transition into adulthood.

Methods: 

Fifteen YA-ASD, age 18 to 25 years, were recruited from autism spectrum disorder centers, participant registries, and social media advertising. Interested individuals completed a survey and individual interview. Semistructured interview guides included questions about transition experiences, current independence, and future goals. Interview transcripts were analyzed using thematic analysis.

Results: 

The desire of young adults with autism spectrum disorder for independence was shown within 4 themes. YA-ASD described their vision of adulthood along with their need for improved skills in driving, living independently, and decision-making.

Conclusion: 

The findings indicate YA-ASD desire to be independent but lack the specific support services to get there.

Copyright © 2021 Wolters Kluwer Health, Inc. All rights reserved.

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