Care coordination is integral to improving the health of children and families. Using a Shared Plan of Care (SPoC) as a care coordination activity is recommended, but related research on outcomes in pediatric populations with complex medical conditions is scarce.
This study explores family outcomes associated with implementation of a care coordination/SPoC intervention with a population of children with neurodevelopmental disabilities and their families.
Children aged 2 to 10 years with a neurodevelopmental disability (autism spectrum disorder: 60.9%; global developmental delay/intellectual disability: 39.1%) were referred by pediatric subspecialty programs for care coordination. The intervention included previsit assessments, planned care visits, SPoC development, and 6-month care coordination. A single-group, repeated-measures design was used to evaluate model feasibility and effects on care coordination access, SPoC use, family/clinician goals and needs met, family-professional partnerships, family empowerment, and worry. Times 1 and 2 survey data were collected from a total of 70 families.
Analysis shows significant improvement in care coordination access, SPoC use, goals achieved, needs met, family empowerment, and reduced worry. There was no significant change in family-professional partnerships and reported SPoC use.
Findings provide preliminary evidence that a care coordination model using a family-centered, goal-oriented SPoC is a feasible and effective approach with a cohort of children with complex neurodevelopmental disorders and is associated with improved family outcomes. Replication studies are warranted and should include a control group, prolonged time period, additional validated outcome measures, and measurement of costs and professional impact.
*Department of Pediatrics, Children's Health Services Research, Indiana University School of Medicine, Indianapolis, IN;
†Department of Pediatrics, Riley Child Development Center, Indiana University School of Medicine, Indianapolis, IN;
‡Department of Biostatistics, Indiana University School of Medicine, Indianapolis, IN;
§Developmental Pediatrics, Department of Pediatrics, Indiana University School of Medicine, Indianapolis, IN.
Address for reprints: Jeanne W. McAllister, BSN, MS, MHA, Department of Pediatrics, Children's Health Services Research, Indiana University School of Medicine, Health Information and Translational Sciences Building, 410 W 10th St, HS Suite 2000, Indianapolis, IN 46202-5140; e-mail: firstname.lastname@example.org.
Disclosure: The authors declare no conflict of interest.
See the Video Abstract at jdbp.org
Received July 25, 2017
Accepted March 07, 2018