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Development and Evaluation of an Instrument to Measure Parental Satisfaction With Quality of Care in Neonatal Follow-Up

Butt, Michelle L. RN, PhD*; Pinelli, Janet RN, DNS*†; Boyle, Michael H. PhD; Thomas, Helen RN, MSc*; Hunsberger, Mabel RN, PhD*; Saigal, Saroj MD, FRCPC; Lee, David S. MB, BS, FRCPC§; Fanning, Jamie K. PT, MClScPT; Austin, Patricia MA*

Journal of Developmental & Behavioral Pediatrics: February 2009 - Volume 30 - Issue 1 - p 57-65
doi: 10.1097/DBP.0b013e31819670fa
Original Article

Objective: The goal of this study was to develop and subsequently evaluate the psychometric properties of a new discriminative instrument to measure parental satisfaction with the quality of care provided in neonatal follow-up (NFU) programs.

Method: The methodological framework for developing and evaluating measurement scales described by Streiner and Norman (Health Measurement Scales: A Practical Guide to Their Development and Use. 3rd ed. New York: Oxford University Press; 2003) was used for the study. Informing the phases of the research was a sample of 24 health care professionals and 381 parents who use NFU services.

Results: A comprehensive list of items representing the construct, parental satisfaction with quality of care, was generated from published reliable and valid instruments, research studies, focus groups with health care experts, and focus groups with parents. Using a clinimetric approach, the 62 items generated were reduced to 39 items based on parents’ ratings of importance and refinement of the items by the research team. After content validation and pretesting, the instrument was tested with parents and underwent item-analysis. The resulting 16-item instrument was composed of 2 subscales, Process and Outcomes. Evaluation of the instrument’s psychometric properties indicated adequate test–retest reliability (intraclass correlation coefficient = 0.72) and internal consistency (Process subscale, α = 0.77; Outcomes subscale, α = 0.90; overall instrument, α = 0.90), as well as good content and construct validity. A confirmatory factor analysis supported the multidimensionality of the construct.

Conclusion: This new instrument provides clinicians and policy-makers with a tool to assess parental satisfaction with the quality of care in NFU, so areas of dissatisfaction can be identified and changes implemented to optimize service provision.

From the *School of Nursing, Departments of †Paediatrics and ‡Psychiatry and Behavioural Neurosciences, McMaster University, Hamilton, Canada; §Department of Paediatrics, Schulich School of Medicine and Dentistry, University of Western Ontario, London, Canada; and ¶Developmental Follow-up Program, St. Joseph’s Health Care London, London, Canada.

Received May 2008; accepted October 2008.

Address for reprints: Michelle L. Butt, R.N., Ph.D., School of Nursing, McMaster University, Room HSC-3H19, 1200 Main Street West, Hamilton, ON L8N 3Z5, Canada; e-mail:

© 2009 Lippincott Williams & Wilkins, Inc.