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Acceptability and Feasibility of a Disease-specific Patient Portal in Adolescents With Sickle Cell Disease

Kidwell, Katherine M. PhD*; Peugh, James PhD*; Westcott, Emilie MS, RD*; Nwankwo, Cara BA*; Britto, Maria T. MD, MPH†,‡; Quinn, Charles T. MD, MS§; Crosby, Lori E. PsyD*

Journal of Pediatric Hematology/Oncology: October 2019 - Volume 41 - Issue 7 - p 561–567
doi: 10.1097/MPH.0000000000001341
Clinical and Laboratory Observations

Objective: To examine the acceptability, feasibility, and efficacy of a health care portal.

Observations: Adolescents and young adults with sickle cell disease were taught how to use sickle cell disease conditions page in MyChart and completed questionnaires at baseline, postintervention (T2, 6 wk after baseline) and after 3 months (T3). In total, 44 participants (M age=18.82, SD=2.72) viewed an average of 58.07 pages from T1 to T2. The portal was highly accepted (90.32%). Efficacy data indicated that portal use was associated with improved patient-provider communication.

Conclusions: Electronic portals are promising tools for improving medical self-management.

*Division of Behavioral Medicine

Center for Innovation in Chronic Disease Care

§Division of Hematology, Cincinnati Children’s Hospital Medical Center

Department of Pediatrics, University of Cincinnati, Cincinnati, OH

Supported by the National Heart, Lung, and Blood Institute at the National Institutes of Health (grant number K07HL108720).

The authors declare no conflict of interest.

Reprints: Katherine M. Kidwell, PhD, 3333 Burnet Ave., MLC 3015, Cincinnati, OH 45229 (e-mail:

Received February 26, 2018

Accepted August 24, 2018

Copyright © 2019 Wolters Kluwer Health, Inc. All rights reserved.