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Health-related Quality of Life of Egyptian Children With Immune Thrombocytopenia and Their Parents

Mokhtar, Galila M. MD; Farid, Samar M. MD; Shaker, Nermin M. MD; Farrag, Khalid E. MBBCH

Journal of Pediatric Hematology/Oncology: April 2014 - Volume 36 - Issue 3 - p 194–199
doi: 10.1097/MPH.0000000000000023
Original Articles
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Health-related quality of life has been recognized as an important pediatric outcome measurement. Kid’s ITP Tool was used to measure health-related quality of life of 80 Egyptian children with immune thrombocytopenia and their parents in relation to different disease parameters. A positive correlation between scores of child/proxy reports and parent report was found. Patients with newly diagnosed immune thrombocytopenia had significantly lower scores of both child/proxy reports and parent reports than chronic patients. Longer duration of illness was correlated with higher scores of child/proxy reports. Negative correlations were found between severity of bleeding and both scores of child/proxy reports and parent reports. Platelet count was positively correlated with parent report score. Regression analysis revealed that severity of bleeding had the highest significant impact on parent report score. Improving parents’ knowledge about the pathogenesis and course of the disease may improve their quality of life.

Departments of *Pediatrics

Neuropsychiatry, Faculty of Medicine, Ain Shams University, Cairo, Egypt

Quality of life Instrument for Immune Thrombocytopenic Purpura was developed with funding from Cangene and is ©The Hospital for Sick Children, Laurentian University, Children’s Hospital of Eastern Ontario and Dr. Dorothy Barnard, 2007.

The authors declare no conflict of interest.

Reprints: Nermin M. Shaker, MD, Department of Neuropsychiatry, Faculty of Medicine, Ain Shams University, Dair Al-Malak, Abbassia, P.O. Box 11657, Cairo, 11657, Egypt (e-mail: mostafabulmagd@hotmail.com).

Received April 25, 2013

Accepted August 20, 2013

Copyright © 2014 Wolters Kluwer Health, Inc. All rights reserved.