The aim of the study was to evaluate feasibility and utility of an electronic health record (EHR) activity to assess transitional readiness, deliver services to meet individual needs, and to track patient progress.
We developed a Transition
EHR activity (TEA) to track patients through a standardized process where transition
readiness is annually assessed and services distributed based on need. The process assesses transition
skills starting at age 12 years and sets goals through shared decision-making, delivers resources according to need, reviews patients’ personal medical histories, and documents healthcare transfer to adult gastroenterology. We piloted TEA among patients with inflammatory bowel disease (IBD) ages ≥12 years. Distribution to patients was measured and tolerability assessed via patient self-report evaluations.
Since launch, TEA has been distributed to all eligible patients (N = 53) with a median age of 16 (14,18) years (median [IQR]), 62% male, 58% white, 26% Hispanic at our weekly dedicated IBD clinic. All have performed the transition
skills’ self-assessment and practicum, and set transition
goals with their healthcare provider. Of these individuals, 41 (77%) participated in survey feedback. On a utility rating scale of 0 (not helpful at all) to 10 (very helpful), patients reported median (IQR) utility scores of 8 (7,10) for the transition
readiness assessment, 9 (7,10) for transition
resources provided, and 9 (7,10) for the medical history summary. Most (91%) would recommend TEA to other patients.
TEA standardized delivery of resources among pediatric IBD patients and was well received and friendly to clinical workflow.