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Weathering the Storm: Living With Parkinson's Disease

Hermanns, Melinda

doi: 10.1097/CNJ.0b013e31820b8d9f
Feature: CE Connection

Parkinson's disease (PD), a movement disorder related to dopamine insufficiency in the brain, affects 7 to 10 million people worldwide. Research has focused on etiology and treatment, while research on how patients deal with PD is limited. This ethnographic study explored the illness experience of 14 participants living with PD. The metaphor, "Sailing the Seas in the Eye of the Storm" depicts their experience. Content themes "Daily Negotiations in the Midst of Uncertainty" (the storm) and "Reconstruction of the Self" (the traveler's voyage) suggest aspects of holistic care for PD patients.

Parkinson's disease (PD) affects millions worldwide. Improve your clinical knowledge of the disease, risk factors, and treatment; learn from 14 people living with PD to enhance your care of patients with neurological deficits.

Melinda Hermanns, PhD, RN, is an Assistant Professor in Nursing at The University of Texas at Tyler. She has a close family member with Parkinson's disease and is the Vice President of the East Texas Chapter of the American Parkinson's Disease Association.

"I live a life of frustration..."

Individual with Parkinson's disease

Portions of information in this article originally appeared in Stanley-Hermanns, M., & Engebretson, J. (2010). Sailing stormy seas: The illness experience of persons with Parkinson's disease. The Qualitative Report, (15) 2, 340–369.

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