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Costs and Burden Associated With Loss of Labor Productivity in Informal Caregivers of People With Dementia: Results From Spain

Farré, Marta, MScN; Kostov, Belchin, PhD; Haro, Josep, Maria, MD; Cabrera, Esther, PhD; Risco, Ester, PhD; Alvira, MCarmen, PhD; Miguel, Susana, PhD; Zabalegui, Adelaida, RN, PhD, FEANS

Journal of Occupational and Environmental Medicine: May 2018 - Volume 60 - Issue 5 - p 449–456
doi: 10.1097/JOM.0000000000001229

Aims: We analyzed indirect costs related to loss of labor productivity (LLP) in informal caregivers (ICs) of people with dementia (PwD) and the associated caregiver burden and patients’ clinical variables.

Methods: Multicenter cohort study of PwD and their ICs (n = 287) focused on two groups: (1) home care and (2) institutional long-term care. The costs of LLP were assessed using the Resource Utilization Dementia instrument and a human capital approach.

Results: The cost for LLP was 378€/month or 4.536€/year. Greater disease severity increased the likelihood of reducing working hours and missing a working day. There was a significant association between partial absenteeism and burden in employed informal caregiver in both the home and institutional setting.

Conclusion: Cognitive impairment contributes to the cost of LLP in IC especially in home-care. LLP has a negative impact on IC burden.

Department of Nursing, Hospital Clínic de Barcelona, Universitat de Barcelona (UB) Barcelona, Spain (Farré, Drs Risco, Zabalegui); Transverse Group for Research in Primary Care, IDIBAPS, Barcelona, Spain (Dr Kostov); Parc Santari Sant Joan de Deu, CIBERSAM, Universitat de Barcelona (UB), Dr. Antoni Pujadas, Barcelona, Spain (Dr Haro); School of Health Sciences Tecno Campus, Pompeu Fabra University, Mataró, Spain (Dr Cabrera); Department of Nursing, CAP Borrell, CAPSBE, Primary Care, Comte Borrell, Barcelona, Spain (Dr Alvira); and School of Health Sciences Gimbernat i TomàsCerdà, UAB. Av. de la Generalitat, Barcelona, Spain (Dr Miguel).

Address correspondence to: Adelaida Zabalegui, RN, PhD, FEANS, Hospital Clínic de Barcelona. Villarroel 170, 08036 Barcelona, Spain (

This research was funded by a grant from the European Commission within the 7th Framework Program (Project 242153).

“Departament de Salut de la Generalitat de Cataluña” for the award of the “PERIS” grant (Plà Estratègic de Recerca I Innovació en salut) 2016 to 2017.

The authors have no conflict of interest.

Copyright © 2018 by the American College of Occupational and Environmental Medicine