The aim of this study was to adapt the Amyotrophic Lateral Sclerosis Assessment Questionnaire (ALSAQ), developed for the evaluation of quality of life in amyotrophic lateral sclerosis (ALS) patients, into the Turkish society.
This methodological study was conducted in 92 ALS patients registered in 2 chapters (Istanbul and Izmir) of Turkish ALS-Motor Neuron Diseases Association. The expert opinion and forward-backward translation methods were applied for the linguistic validity of the ALSAQ (long and short versions: ALSAQ-40 and ALSAQ-5, respectively).
In the analysis of internal consistency, the Cronbach’s α reliability coefficient was .96 for the total scale, whereas it was between .88 and .98 for the 5 dimensions. The dimensions of the long form were correlated with the items of the short form.
The Turkish versions of the ALSAQ short and long forms are valid and reliable tools to be used in the assessment of the quality of life in ALS patients.
Naile Alankaya, PhD RN, is Assistant Professor, Department of Nursing, Canakkale Onsekiz Mart University Faculty of Health Sciences, Canakkale, Turkey.
Aylin Özakgül, PhD RN, is Assistant Professor, Florence Nightingale Faculty of Nursing, Department of Fundamentals of Nursing, Istanbul University-Cerrahpasa, Istanbul, Turkey.
Alper Kaya, MD, is Board Member of the ALS/MND Association of Turkey, Izmir, Turkey.
Aynur Dik, RN, is President of the Home Care Association of Turkey, Istanbul, Turkey.
Questions or comments about this article may be directed to Zeliha Tülek, PhD RN, at email@example.com. She is an Associate Professor, Florence Nightingale Faculty of Nursing, Department of Medical Nursing, Istanbul University-Cerrahpasa, Istanbul, Turkey.
This study was supported by Sabanci Foundation (FPRG 130-0136).
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The authors declare no conflicts of interest.
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Online date: August 30, 2019