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A Literature Review of Studies Using Qualitative Research to Explore Chronic Neuromuscular Disease

LaDonna, Kori A.

Journal of Neuroscience Nursing: June 2011 - Volume 43 - Issue 3 - p 172-182
doi: 10.1097/JNN.0b013e3182135ac9

ABSTRACT Although most neuromuscular disease research articles reflect traditional quantitative approaches, qualitative methods are becoming more prevalent in the neuromuscular literature. Arguably, qualitative research provides rich data that may be used to generate patient-centered outcome measures or influence current standards of care. The purpose of this article is to explore the qualitative literature pertaining to individuals and families living with chronic neuromuscular disease in order to suggest implications for practice. Fifty-six qualitative articles addressing seven research themes including Illness Experience; Work, Recreation, and Services; Assisted Ventilation; Caregiving; Genetics; Communication and Information Seeking; and Palliative Care were identified.

Questions or comments about this article may be directed to Kori A. LaDonna, BA, at She is a PhD candidate at the University of Western Ontario, London, Ontario, Canada.

© 2011 American Association of Neuroscience Nurses