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Healthcare Reform and Concurrent Curative Care for Terminally Ill Children: A Policy Analysis

Lindley, Lisa C. PhD(c)

Journal of Hospice & Palliative Nursing: March-April 2011 - Volume 13 - Issue 2 - p 81-88
doi: 10.1097/NJH.0b013e318202e308

Within the Patient Protection and Affordable Care Act of 2010 or healthcare reform is a relatively small provision about concurrent curative care that significantly affects terminally ill children. Effective on March 23, 2010, terminally ill children, who are enrolled in a Medicaid or state Children's Health Insurance Plans hospice benefit, may concurrently receive curative care related to their terminal health condition. The purpose of this article was to conduct a policy analysis of the concurrent curative care legislation by examining the intended goals of the policy to improve access to care and enhance quality of end-of-life care for terminally ill children. In addition, the policy analysis explored the political feasibility of implementing concurrent curative care at the state level. Based on this policy analysis, the federal policy of concurrent curative care for children would generally achieve its intended goals. However, important policy omissions focus attention on the need for further federal end-of-life care legislation for children. These findings have implications nurses.

Lisa C. Lindley, PhD(c), is Doctoral Candidate, School of Nursing, University of North Carolina-Chapel Hill.

Address correspondence to Lisa Lindley, PhD(c), School of Nursing, University of North Carolina-Chapel Hill, CB #7460, Chapel Hill, NC 27599-7460 (

This publication was made possible by a grant from the National Institute of Nursing Research (T32NR008856).

The contents are solely the responsibility of the authors and do not necessarily represent the official views of the National Institute of Nursing Research, National Institutes of Health.

© 2011 The Hospice and Palliative Nurses Association