Feature ArticlesNavigating End-of-Life Needs for a Person With Intellectual Disabilities and Their CaregiversMoore, Caitlyn M. DNP, MS, CRNP, AGACNP-BC, ACHPN; Kates, Jeannette PhD, APRN, AGPCNP-BC, GNP-BC Author Information Caitlyn M. Moore, DNP, MS, CRNP, AGACNP-BC, ACHPN, is assistant professor of Nursing at College of Nursing, Thomas Jefferson University, Philadelphia, and a palliative care and hospice nurse practitioner at Main Line Health, Radnor, PA. Jeannette Kates, PhD, APRN, AGPCNP-BC, GNP-BC, is associate professor of Nursing and director of the Adult-Gerontology Primary Care Nurse Practitioner Program at the College of Nursing, Thomas Jefferson University, Philadelphia, PA. Address correspondence to Caitlyn M. Moore, DNP, MS, CRNP, AGACNP-BC, ACHPN, College of Nursing, Thomas Jefferson University, 130 S 9th St, Suite 841, Philadelphia, PA 19107 ([email protected]). The authors have no conflicts of interest to disclose. Journal of Hospice & Palliative Nursing 24(6):p 292-297, December 2022. | DOI: 10.1097/NJH.0000000000000896 Buy CME Test Metrics Abstract People with intellectual disabilities (IDs) are living longer, with many experiencing significant barriers to accessing palliative care and hospice services. Families, caregivers, and direct support professionals comprise essential portions of the community of support often surrounding a person with IDs. For a variety of reasons, including clinician bias and communication difficulties, many people with IDs are excluded from critical conversations regarding their health and life. This article uses a blended case study to explore the complexities and unique considerations in ensuring ethical and practical end-of-life care for people with IDs. Decision-making must center on the person with ID and include them in ways they can understand, thus facilitating their right to autonomy. A collaborative approach to care with shared expertise between caregivers and hospice and palliative care services is key to providing effective, patient-centered care at the end of life. There are tremendous areas of opportunity to improve end-of-life care for this population by partnering with people with IDs, their families, and caregivers. Copyright © 2022 by The Hospice and Palliative Nurses Association. All rights reserved.