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HPNA 2019-2022 Research Agenda

Development and Rationale

Romo, Rafael D. PhD, RN, PHN; Carpenter, Joan G. PhD, CRNP, ACHPN, FPCN; Buck, Harleah PhD, RN, FPCN, FAHA, FAAN; Lindley, Lisa C. PhD, RN, FPCN; Xu, Jiayun PhD, RN; Owen, John A. EdD, MSc; Sullivan, Suzanne S. PhD, MBA, RN, CHPN; Bakitas, Marie DNSc, CRNP, NP-C, AOCN, ACHPN, FAAN; Dionne-Odom, J. Nicholas PhD, MSN, MA, RN, FPCN; Zubkoff, Lisa PhD; Matzo, Marianne PhD, RN, APRN-CNP, AOCNP, AHPCN, FPCN, FAAN on behalf of the HPNA Research Advisory Council

Journal of Hospice & Palliative Nursing: August 2019 - Volume 21 - Issue 4 - p E17–E23
doi: 10.1097/NJH.0000000000000580
Online-Only Article

Building on the strong work of previous research agendas (2009-2012, 2012-2015, 2015-2018), the Hospice and Palliative Nurses Association Research Advisory Council developed the 2019-2022 Research Agenda in consultation with Hospice and Palliative Nurses Association (HPNA) membership and assessment of major trends in palliative nursing. The HPNA Research Advisory Council identified 5 priority areas and asked subject experts in each area to summarize the state of the science, identify critical gaps, and provide recommendations for future research. This document expands the executive summary published on the HPNA website ( and provides supporting evidence for the 2019-2022 recommendations. The 5 priority areas are as follows: (1) pediatric hospice and palliative nursing research; (2) family caregiving; (3) interprofessional education and collaborative practice; (4) big data science, precision health, and nursing informatics; and (5) implementation science.

Rafael D. Romo, PhD, RN, PHN, is assistant professor of Nursing, University of Virginia School of Nursing, Charlottesville.

Joan G. Carpenter, PhD, CRNP, ACHPN, FPCN, is research associate, University of Pennsylvania School of Nursing, and health science specialist, Corporal Michael J. Crescenz Veterans Affairs Medical Center Philadelphia, Pennsylvania.

Harleah Buck, PhD, RN, FPCN, FAHA, FAAN, is associate professor and coordinator of Chronic Illness Initiatives, University of Southern Florida, Tampa.

Lisa C. Lindley, PhD, RN, FPCN, is associate professor, College of Nursing, University of Tennessee, Knoxville.

Jiayun Xu, PhD, RN, is assistant professor, College of Health and Human Sciences, Purdue University School of Nursing, West Lafayette, Indiana.

John A. Owen, EdD, MSc, is associate director, Center for Academic Strategic Partnerships for Interprofessional Research and Education (ASPIRE), University of Virginia School of Nursing, Charlottesville.

Suzanne S. Sullivan, PhD, MBA, RN, CHPN, is assistant professor, University at Buffalo State University of New York School of Nursing.

Marie Bakitas, DNSc, CRNP, NP-C, AOCN, ACHPN, FAAN, is professor and Marie L. O’Koren Endowed Chair in Nursing, University of Alabama at Birmingham School of Nursing.

J. Nicholas Dionne-Odom, PhD, MSN, MA, RN, FPCN, is assistant professor of nursing, University of Alabama at Birmingham School of Nursing.

Lisa Zubkoff, PhD, is assistant professor of psychiatry, Dartmouth University Geisel School of Medicine and the Dartmouth Institute, Hanover, New Hampshire.

Marianne Matzo, PhD, RN, APRN-CNP, AOCNP, AHPCN, FPCN, FAAN, is director of research, Hospice and Palliative Nurses Association, Pittsburgh, PA.

Address correspondence to Rafael D. Romo, PhD, RN, PHN, University of Virginia School of Nursing, 202 Jeanette Lancaster Way, Charlottesville, VA 22903 (

The authors have no conflicts of interest to disclose.

Supplemental digital content is available for this article. Direct URL citations appear in the printed text and are provided in the HTML and PDF versions of this article on the journal’s Web site (

Online date: June 4, 2019

© 2019 by The Hospice and Palliative Nurses Association.