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Family Outcomes for Families of 4–5-Year-Old Children on the Autism Spectrum Who Have Received Early Childhood Intervention in Australia

Adams, Dawn, PhD; Keen, Deb, PhD; Heussler, Helen S., MBBS; Wicks, Rachelle, BSc (Hons); Roberts, Jacqueline, PhD

doi: 10.1097/IYC.0000000000000143
Original Research/Study
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Early childhood intervention (ECI) services for children on the autism spectrum commonly espouse a family-centered approach but outcomes studies often focus solely upon the child. Mothers of 96 children on the spectrum (aged 4–5 years) completed a measure of access to ECI and the Family Outcomes Survey—Revised. Family outcomes after ECI were generally positive, although a notable proportion of mothers rated that their child still did not participate in social, recreational, or religious activities that they would want to (15.6%) and that as parents, they did not know about post-ECI options (14.6%). Family outcomes and perceived helpfulness of ECI did not differ with demographic data with the exception of Accessing the community subscale, which was significantly higher in families with incomes above AUD$80,000.

Autism Centre of Excellence, School of Education and Professional Studies, Griffith University, Brisbane, Australia (Drs Adams, Keen, and Roberts); Griffith Institute for Educational Research, Brisbane, Australia (Drs Adams, Keen, and Roberts); Cooperative Research Centre for Living With Autism (Autism CRC), Brisbane, Australia (Drs Adams, Keen, and Roberts and Mss Heussler and Wicks); Children's Health Queensland, Brisbane, Australia (Ms Heussler); Mater Research Institute, The University of Queensland, Brisbane, Australia (Ms Heussler); and School of Applied Psychology, Griffith University, Brisbane, Australia (Ms Wicks).

Correspondence: Dawn Adams, PhD, Autism Centre of Excellence, School of Education and Professional Studies, Griffith University, Messines Ridge Rd, Mt Gravatt, Brisbane, QLD 4122, Australia (Dawn.Adams@griffith.edu.au).

The authors thank the participants in the LASA for their continued time and dedication to the project. They also acknowledge the work of the LASA team members: Jacqueline Roberts (project leader), Susan Bruck, Trevor Clark, Sandra Devaraj, Robyn Garland, Antoinette Hodge, Patricia Howlin, Deb Keen, Jessica Paynter, Kate Simpson, Natalie Silove, David Trembath, Madonna Tucker, Marleen Westerveld, Katrina Williams, and the financial support of the Cooperative Research Centre for Living With Autism (Autism CRC), established and supported under the Australian Government's Cooperative Research Centres Program.

The authors acknowledge the financial support of the Cooperative Research Centre for Living With Autism (Autism CRC grant 2.007), established and supported under the Australian Government's Cooperative Research Centres Program.

The authors declare no conflict of interest.

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