Experiences of Families with Adult Home Invasive Mechanical Ventilation Patients: A Meta-Synthesis : Home Healthcare Now

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Experiences of Families with Adult Home Invasive Mechanical Ventilation Patients

A Meta-Synthesis

Nayeri, Dehghan PhD, RN; Bahramnezhad, Fatemeh PhD, RN; Asgari, Parvaneh PhD

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Home Healthcare Now 39(6):p 336-343, November/December 2021. | DOI: 10.1097/NHH.0000000000001018


Adult home mechanical ventilation (HMV) represents a small but growing vulnerable population in the community. Caring for these patients exposes families to many positive and negative experiences. This study aimed to synthesize the existing qualitative research that examined family members' experiences of caring for adult patients using HMV. Medline, PubMed, CINAHL, Scopus, and Web of Science were searched for qualitative studies conducted with family caregivers of adult patients receiving HMV. Thematic synthesis was conducted to interpret the findings. The GRADE-CERQual approach was used to assess the level of confidence. After completion of the screening process, 11 studies were included. The main theme from the meta-synthesis was the Experience of changing as a person. Families' experiences were divided into three stages over time: (1) Mixed feelings, (2) Challenging, and (3) Continuity. Family experiences illustrate that teamwork with an interprofessional approach based on patient and family needs is required to deliver care, improve clinical outcomes, reduce adverse experiences, and increase family satisfaction.

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