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A Qualitative Study on Cancer Care Burden

Experiences of Iranian Family Caregivers

Hassankhani, Hadi, PhD; Eghtedar, Samereh, PhD; Rahmani, Azad, PhD; Ebrahimi, Hossein, PhD; Whitehead, Bill, PhD

doi: 10.1097/HNP.0000000000000309
FEATURES

The aim of this study was to explore the experiences of Iranian family caregivers with regard to the burden of caregiving. This is in the context of illuminating and identifying the experiences of family members from different contextual perspectives. In this qualitative study, purposive sampling was conducted in 2016. Data were collected using semistructured interviews and were analyzed using content analysis. Data analysis identified 4 categories and 8 subcategories: (1) burnout (physical problems and psychoemotional stress), (2) role conflict (balancing caring roles and family responsibilities; failure in professional or educational roles), (3) health system tensions (inadequate support from health professionals; ignorance of family members in health structure), and (4) social challenges of cancer (economic burden; taboo of cancer). In conclusion, nurses need to provide individualized support and counseling that address the sources of burden. This highlights the benefit of training health care professionals to provide culturally sensitive support based on family caregivers' needs and circumstances.

Center of Qualitative Studies (Dr Hassankhani) and Student Research Committee (Dr Eghtedar), Nursing and Midwifery School (Drs Eghtedar, Hassankhani, Rahmani and Ebrahimi), Tabriz University of Medical Sciences, Tabriz, Iran; and University of Derby, Derby, United Kingdom (Dr Whitehead).

Correspondence: Samereh Eghtedar, PhD, Student Research Committee, Nursing and Midwifery School, Tabriz University of Medical Sciences, Tabriz, Iran 5138947977 (eghtedar_nurse@yahoo.com).

The authors have disclosed that they have no significant relationships with, or financial interest in, any commercial companies pertaining to this article.

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