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Quality of Life of Caregivers of Children With Glaucoma in an Arab Population

A Cross-Sectional Study

AlQurashi, Mohannad MD*,†; Mocan, Mehmet C. MD; AlDarrab, Abdulrahman MD*,§; Al Thiabi, Saad MD*,∥; Khandekar, Rajiv MD*; Ahmad, Khabir MD, PhD*; Edward, Deepak P. MD*,‡

doi: 10.1097/IJG.0000000000001357
Original Studies

Background: To evaluate the quality of life (QoL) measures of caregivers of children with glaucoma using the Caregiver’s Congenital Glaucoma Quality of Life (CarCGQoL) questionnaire.

Materials and Methods: This was a cross-sectional study undertaken at King Khaled Eye Specialist Hospital, Riyadh, Saudi Arabia. QoL of the caregivers, the main outcome, was assessed using the 20-item CarCGQoL questionnaire. Raw QoL scores of caregivers were converted to Rasch-calibrated interval level scores. A multiple linear regression analysis was performed to identify factors associated with caregivers’ QoL.

Results: Eighty-five caregivers (46 fathers and 39 mothers) aged 42.5±7.5 years were included in the study. The mean QoL score of caregivers was 0.63 (±1.05). The presence of additional children with glaucoma in the household had the strongest negative relationship with caregivers’ QoL [β=−0.75, 95% confidence interval (CI): −1.22, −0.27; P=0.003]. A poor QoL was noted with mother caregivers (β=−0.46, 95% CI: −0.87, −0.04; P=0.031) and those caring for blind children (vision <20/200 in the better eye) (β=−0.52, 95% CI: −0.98,−0.05; P=0.030) when compared with their reference groups. A 22.3% variance in the QoL score was explained by these three factors (adjusted R2=0.223).

Conclusions: The QoL of caregivers of children with glaucoma was poor. Caregiver’s relation to patients, additional children with glaucoma in the family and patient’s vision in the better eye could influence a caregiver’s QoL. Periodic evaluation of QoL of caregivers is recommended to plan counseling and other support services.

*King Khaled Eye Specialist Hospital, Riyadh

Jeddah Eye Hospital, Jeddah

§Department of Ophthalmology, College of Medicine, Prince Sattam Bin Abdulaziz University, AlKharj

Ophthalmology Department, College of Medicine, Qassim University, Buraydah, Saudi Arabia

Department of Ophthalmology, University of Illinois College of Medicine at Chicago, Chicago, IL

Disclosure: The authors declare no conflict of interest.

Reprints: Deepak P. Edward, MD, King Khaled Eye Specialist Hospital, Riyadh 11642, Kingdom of Saudi Arabia (e-mail:

Received April 16, 2019

Accepted August 17, 2019

Online date: September 25, 2019

Copyright © 2019 Wolters Kluwer Health, Inc. All rights reserved.