Original articles: GastroenterologyManagement of coeliac disease patients after the confirmation of diagnosis in Central EuropeRiznik, Petraa; De Leo, Luiginab; Dolinsek, Jasminac; Gyimesi, Juditd; Klemenak, Martinaa; Koletzko, Bertholde,f; Koletzko, Sibyllef,g; Koltai, Tundeh; Korponay-Szabó, Ilma Ritad,i; Krencnik, Tomaza; Milinovic, Marinaj; Not, Tarcisiob; Palcevski, Gorank; Sblattero, Danielel; Werkstetter, Katharina Juliaf; Dolinsek, Jerneja,m Author Information aGastroenterology, Hepatology and Nutrition Unit, Department of Paediatrics, University Medical Centre Maribor, Maribor, Slovenia bIRCCS Burlo Garofolo Trieste, Institute for Maternal and Child Health, Trieste, Italy cMunicipality of Maribor, Project Office, Maribor, Slovenia dCoeliac Disease Centre, Heim Pál National Paediatric Institute, Budapest, Hungary eStiftung Kindergesundheit (Child Health Foundation) at Dr. von Hauner Children’s Hospital fDr. von Hauner Children’s Hospital, Clinical Medical Centre, LMU, Munich, Germany gDepartment of Pediatrics, Gastroenterology and Nutrition, School of Medicine Collegium Medicum University of Warmia and Mazury, Olsztyn, Poland hHungarian Celiac Society, Celiac Society, Budapest, Hungary iFaculty of Medicine, Department of Paediatrics, University of Debrecen, Debrecen, Hungary jAssociation of Celiac Patients, Primorsko-Goranska County kDepartment for Gastroenterology, Paediatric Clinic, University Hospital Rijeka, Rijeka, Croatia lDepartment of Life Sciences, University of Trieste, Trieste, Italy mMedical Faculty, Department of Paediatrics, University of Maribor, Maribor, Slovenia Received 7 July 2020 Accepted 23 November 2020 Correspondence to Jernej Dolinsek, MD, PhD, Department of Paediatrics, Gastroenterology, Hepatology and Nutrition Unit, University Medical Centre Maribor, Ljubljanska 5, 2000 Maribor, Slovenia, Tel: +0038623212110; e-mail: [email protected] European Journal of Gastroenterology & Hepatology: January 2022 - Volume 34 - Issue 1 - p 27-32 doi: 10.1097/MEG.0000000000002039 Buy Metrics Abstract Background Recently published paediatric guidelines for diagnosing coeliac disease do not include recommendations on the follow-up of coeliac disease patients. Goal The aim of this study was to assess the management practices and experience of coeliac disease patients with their follow-up appointments in Central Europe. Study Gastroenterologists and coeliac disease patients in five Central European countries were asked to complete the web-based questionnaire focusing on coeliac disease management practices. Results Answers from 147 gastroenterologists and 2041 coeliac disease patients were available for the analysis. More than half of the gastroenterologists (58.5%) schedule the first follow-up visit within 3 months after the diagnosis. At follow-up, tissue transglutaminase antibodies are checked in almost all patients (95.9%). Approximately two-thirds (60.7%) of gastroenterologists refer all of their patients to the dietitian at diagnosis. Similarly, 42.8% of coeliac disease patients reported that they had not been appointed to a dietitian. Almost one-third of coeliac disease patients (30.8%) reported that they had no follow-up appointments with gastroenterologist at all. Conclusions Follow-up of coeliac disease patients is suboptimal in Central Europe. Many patients are not followed regularly. A lot of patients are not referred to a dietitian. The recommendations on the optimal follow-up of coeliac disease patients are needed in order to improve patient care. Copyright © 2021 Wolters Kluwer Health, Inc. All rights reserved.