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Scientific Registry of Transplant Recipients program-specific reports

where we have been and where we are going

Kasiske, Bertram L.a,b; Salkowski, Nicholasa; Wey, Andrewa; Israni, Ajay K.a,b,c; Snyder, Jon J.a,c

Current Opinion in Organ Transplantation: February 2019 - Volume 24 - Issue 1 - p 58–63
doi: 10.1097/MOT.0000000000000597
REGULATORY ISSUES AND QUALITY IMPROVEMENT: Edited by Ryutaro Hirose

Purpose of review Reporting provider data on quality to patients and the general public is increasingly common in healthcare. Reporting outcomes in solid organ transplantation has always been controversial and deserves careful consideration to ensure optimal results.

Recent findings As mandated by Federal law, the Scientific Registry of Transplant Recipients publishes program-specific reports on transplant candidates, recipients, donors, and transplant outcomes every 6 months. Recent changes designed to make the results more easily understood by patients and the general public have been well received by patients and controversial among providers. In particular, outcomes are now reported using a five-tier system that distinguishes program results better than the old three-tier system, in which almost all programs were reported “as expected.” Metrics that reflect access to transplant are also reported, including transplant rate and survival on the waiting list. Possible measures of longer term outcomes and program rates of accepting organs for transplant are being explored.

Summary Providing detailed information regarding transplant program practices and outcomes in ways that patients and the general public can understand remains a major focus of the Scientific Registry of Transplant Recipients. Efforts to improve data collection and metrics reported are ongoing.

aHennepin Healthcare Research Institute, Scientific Registry of Transplant Recipients

bDepartment of Medicine, Hennepin Healthcare

cDivision of Epidemiology and Community Health, University of Minnesota, Minneapolis, Minnesota, USA

Correspondence to Bertram L. Kasiske, MD, Hennepin Healthcare Research Institute, Scientific Registry of Transplant Recipients, 701 Park Avenue, Suite S4.100, Minneapolis, MN 55415, USA. Tel: +1 612 873 6974; fax: +1 612 873 1644; e-mail: bkasiske@cdrg.org

Written work prepared by employees of the Federal Government as part of their official duties is, under the U.S. Copyright Act, a “work of the United States Government” for which copyright protection under Title 17 of the United States Code is not available. As such, copyright does not extend to the contributions of employees of the Federal Government.

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