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Patient perspectives in sarcoidosis

van Helmondt, Sanne J.a; Polish, Louis B.b; Judson, Marc A.c; Grutters, Jan C.a,d

Current Opinion in Pulmonary Medicine: September 2019 - Volume 25 - Issue 5 - p 478–483
doi: 10.1097/MCP.0000000000000602
SARCOIDOSIS: Edited by Jan C. Grutters and Marc A. Judson
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Purpose of review The review presents an overview of the scientific publications about patient perspectives in sarcoidosis.

Recent findings The literature on patient perspectives in sarcoidosis is limited. Patient perspectives in sarcoidosis encompass a myriad of topics that have been addressed to some degree in the literature: patient needs and perceptions, patient-reported burden of sarcoidosis, and patient treatment priorities. Similar findings across studies were high levels of reported fatigue, a need to incorporate psychological support into the treatment plan and easy access to sarcoidosis expert centers. Furthermore, largely similar results were found across countries.

Summary There is a growing focus in patient perspectives in terms of sarcoidosis treatment. A multidisciplinary approach including psychological support and attention to fatigue, may better reflect the needs of sarcoidosis patients. Further research on sarcoidosis patient perspectives in sarcoidosis is needed to optimize care.

aDepartment of Pulmonology, ILD Center of Excellence, St. Antonius Hospital, Nieuwegein, The Netherlands

bUniversity of Vermont Larner College of Medicine, Burlington, Vermont, USA

cAlbany Medical College, Albany, New York, USA

dDivision of Heart and Lungs, University Medical Center, Utrecht, The Netherlands

Correspondence to Sanne J. van Helmondt, MSc, Department of Pulmonology, ILD Center of Excellence, St. Antonius Hospital, Koekoekslaan 1, 3435 CM Nieuwegein, The Netherlands. Tel: +31 883201572; e-mail: s.van.helmondt@antoniusziekenhuis.nl

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