To provide a descriptive account of long-term functioning (≥5 y posttreatment) among youth who completed intensive interdisciplinary pain treatment (IIPT) for pediatric chronic pain conditions.
A total of 95 patients (mean age at follow-up=20.0 y) treated at least 5 years previously at a single IIPT program completed questionnaires assessing pain, functional disability, health care utilization, academic/career achievement, and quality of life. Data analyses focused on pain, functioning, and progress toward developmental goals at long-term follow-up.
The majority of respondents report significant reduction in pain compared with preadmission (P<0.001). Five years posttreatment, average functional disability scores were in the minimal range, with statistically significant decrease in functional disability from time of admission (P<0.001). Nearly 80% of respondents characterized themselves as having no functional difficulties at follow-up. Clinically significant improvement was established for both pain and function. Respondents generally reported developmentally appropriate status, with 89% graduating high school on schedule.
Results show long-term positive functioning among individuals who underwent intensive rehabilitation treatment for chronic pain as children or adolescents. Despite experiencing one or more pain flares at some point after treatment, most former IIPT patients report minimal to no ongoing functional disability, complete or partial resolution of pain symptoms, and developmentally appropriate progress toward goals (eg, school completion, independent living).
*Pediatric Pain Rehabilitation Program, Boston Children’s Hospital
‡Department of Anesthesiology, Critical Care and Pain Medicine, Boston Children’s Hospital
†Department of Psychiatry, Boston Children’s Hospital and Harvard Medical School, Boston, MA
Research support was provided through the Sara Page Mayo Endowment for Pediatric Pain Research to Charles Berde, MD, PhD, and through the Department of Anesthesiology, Critical Care and Pain Medicine, Boston Children’s Hospital.
The authors declare no conflict of interest.
Reprints: Deirdre E. Logan, PhD, Pain Treatment Service, Boston Children’s Hospital, 333 Longwood Ave., Boston, MA 02115 (e-mail: email@example.com).
Received July 3, 2017
Received in revised form March 27, 2018
Accepted March 30, 2018