Original ArticleParents' Views About Infant Pain in Neonatal Intensive CareFranck, Linda S. PhD, RN, RGN, RSCN*†; Allen, Alison BSc (Hons), RGN, RSCN*; Cox, Susanne BA(Hons), RGN, RSCN†; Winter, Ira MSc, RGN, RSCN*Author Information From the *Institute of Child Health and Great Ormond Street Hospital for Children NHS Trust, London, England; and †King's College School of Nursing and Midwifery, London, England. Received for publication March 24, 2003; revised September 22, 2003; accepted September 28, 2003. Supported in part by the Florence Nightingale School of Nursing and Midwifery, King's College London, and the Institute of Child Health and Great Ormond Street Hospital for Children NHS Trust. Research at the Institute of Child Health and Great Ormond Street Hospital for Children NHS Trust also benefits from R&D funding received from the NHS Executive. The views expressed in this publication are those of the authors and are not necessarily those of the NHS Executive. Reprints: Linda S. Franck, PhD, RN, RGN, RSCN, Professor and Chair of Children's Nursing Research Studies, Institute of Child Health & Great Ormond Street Hospital for Children NHS Trust, Level 7, Old Building, Great Ormond Street, London WC1N 3JH, England (e-mail: [email protected]). The Clinical Journal of Pain: March-April 2005 - Volume 21 - Issue 2 - p 133-139 Buy Abstract Objective: The purpose of this study was to describe parents' perceptions and feelings about their infant's pain experience and pain care in the neonatal intensive care unit. Method: Thematic content analysis was used to encode the qualitative information contained in parents' written comments on a questionnaire about their views on infant pain and pain care. The questionnaire was completed by 257 parents from 9 neonatal units in the United Kingdom (n = 196) and 2 neonatal units in the United States (n = 61). Results: Parents' comments indicated that they saw medical procedures as the major source of their infant's pain, wanted more information, and generally desired more involvement in this aspect of their infant's care. Parents' comments indicated that their infant's pain affected them emotionally and that they worried about their future relationship with their infant. Parents also articulated specific ways in which health care professionals could assist them and their infants in coping with neonatal intensive care unit-related pain. Discussion: The findings from this study expand knowledge about how parents understand and respond to the difficult situation in which their newborn infant is subjected to essential but painful procedures. The findings provide direction for research and clinical practice interventions aimed at: 1) helping parents to gain knowledge and correct their misperceptions; 2) engaging parents in meaningful dialog about their concerns and preferences for involvement; and 3) helping parents to develop effective coping strategies to reduce psychologic distress related to their infant's pain. © 2005 Lippincott Williams & Wilkins, Inc.