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Exploring the Person-Centeredness of an Innovative E-Supportive System Aimed at Person-Centered Care: Prototype Evaluation of the Care Expert

Ventura, Filipa MSc, RN; Koinberg, Ingalill PhD, RN; Sawatzky, Richard PhD, RN; Karlsson, Per PhD, MD; Öhlén, Joakim PhD, RN

CIN: Computers, Informatics, Nursing: May 2016 - Volume 34 - Issue 5 - p 231–239
doi: 10.1097/CIN.0000000000000225
FEATURE ARTICLES

Integrated in a multiphase development project, the Care Expert is a prototype of a novel e-supportive system aiming to mediate person-centered care in the context of outpatient oncology. At this early stage of development, the current study was conducted aiming at exploring the person-centeredness concept underlying the Care Expert version 1.0 and its usability for patients receiving outpatient chemotherapy for breast cancer. Within a user-centered design, we followed a mixed-methods approach entailing subjective assessment and diagnostic evaluation of the prototype. Four women undergoing outpatient chemotherapy participated in individual sessions and rated highly the system’s usability. Their accounts led to identifying three supportive functions: continuous communication, reinforcement of self-driven agency, and cooperative agency with a sense of being looked after. We discuss the results in relation to theoretical fields that might guide further the development of the supportive system and usability recommendations. Care Expert has the potential to mediate person-centered care in outpatient oncology. Nevertheless, additional cycles of iterative development with the software team and of participatory design focusing on oncology nurses’ perspectives are required before departing to the feasibility phase in intervention research.

Author Affiliations: Institute of Health and Care Sciences (Ms Ventura and Drs Koinberg and Öhlén) and Institute of Clinical Sciences (Dr Karlsson), Sahlgrenska Academy, and Center for Person­Centered Care (Ms Ventura and Drs Koinberg and Öhlén), University of Gothenburg, Gothenburg, Sweden; Trinity Western University, Langley (Dr Sawatzky); and Centre for Health Evaluation and Outcome Sciences, Vancouver, British Columbia, Canada (Dr Sawatzky); and Palliative Research Centre, Ersta Sköndal University College, Stockholm, Sweden (Dr Öhlén).

The study was funded by the Swedish Bröstcancerföreningarnas Riksorganisation. The work of F.V. was funded by the Portuguese Fundação para a Ciência e Tecnologia, through the doctoral grant SFRH/BD/68761/2010, which is supported by the Programa Operacional Potencial Humano Fundo Social Europeu. The work of I.K. and J.Ö. was supported by the Centre for Person-Centred Care at University of Gothenburg, which is funded by the Swedish Government’s grant for Strategic Research Areas, Care Sciences. R.S. holds a Canada Research Chair (Tier 2) funded by the Canadian Institutes of Health Research. The remaining authors have disclosed that they have no significant relationships with, or financial interest in, any commercial companies pertaining to this article.

Corresponding author: Filipa Ventura, MSc, RN, Institute of Health and Care Sciences, Box 457, 405 30 Gothenburg, Sweden (filipa.ventura@gu.se).

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