FEATURE ARTICLECognitive Testing of PAINReportIt in Adult African Americans With Sickle Cell DiseaseJHA, ARUNA PhD; SUAREZ, MARIE L. PhD; FERRANS, CAROL E. PhD, RN, FAAN; MOLOKIE, ROBERT MD; OK KIM, YOUNG DrPH, RN; WILKIE, DIANA J. PhD, RN, FAANAuthor Information Author Affiliations: University of Illinois at Chicago College of Nursing Department of Biobehavioral Health Science (Drs Jha, Suarez, Ferrans, Kim, and Wilkie); University of Illinois at Chicago College of Medicine Division of Hematology/Oncology (Dr Molokie); and Jesse Brown VA Medical Center, Chicago, IL (Dr Molokie). The research was supported in part by the Center for Reducing Risks in Vulnerable Populations (CRRVP) (grant P30 NR09014), National Institute of Nursing Research/National Institutes of Health. This publication was made possible by grant 1RO1 HL078536 (to D.J.W.) from the National Institutes of Health, National Heart Lung and Blood Institute, and grant R44MH070226 (to A.J. and D.J.W.) from the National Institutes of Health, National Institute of Mental Health. Its contents are solely the responsibility of the authors and do not necessarily represent the official views of the National Institute of Nursing Research, National Institute of Mental Health, or the National Heart Lung and Blood Institute. The final peer-reviewed manuscript is subject to the National Institutes of Health Public Access Policy. PAINReportIt is owned by Nursing Consult, LLC, a company in which none of the authors owns or shares. Corresponding author: Diana J. Wilkie, PhD, RN, FAAN, Department of Biobehavioral Health Science (MC 802), University of Illinois at Chicago, Room 660, 845 S Damen Ave, Chicago, IL 60612-7350 (firstname.lastname@example.org). CIN: Computers, Informatics, Nursing: May-June 2010 - Volume 28 - Issue 3 - p 141-150 doi: 10.1097/NCN.0b013e3181d7820b Buy Metrics Abstract PAINReportIt, a computerized version of the McGill Pain Questionnaire (Pain. 1975, 1:277-299), presents pain measurement items to responders in serial display screens accompanied by pop-up screens. In this study, we used cognitive interviews to examine further validity of PAINReportIt with 25 African Americans with sickle cell disease. The specific aims were to determine if the questions in the PAINReportIt program were relevant to and understood by African Americans with sickle cell disease and to describe the nature of the pain they experienced. Most study participants were enthusiastic and able to use the tool as intended and appreciated the comprehensiveness, detail, and multidimensionality of its pain data. For some screens, two to six participants' responses suggested some question understanding and interpretation issues, inability to retrieve the requested information, or technical issues. Their responses indicated that screens lacked sufficient specificity for the temporal nature of pain recurrence over a lifetime. The program captured both nociceptive and neuropathic aspects of sickle cell pain and provided detailed information on the location, intensity, quality, and pattern of pain experienced by participants. We recommend that future revisions to the PAINReportIt program address the temporal issues of measuring recurrent pain, resolve technological issues related to pop-ups, and simplify difficult words to better match the typical health literacy levels of patients. These revisions could further enhance the technological aspects, usability, and cultural appropriateness of the tool for African Americans with sickle cell disease. © 2010 Lippincott Williams & Wilkins, Inc.