Follow the Yellow Brick Road: Self-management by Adolescents and Young Adults After a Stem Cell Transplant
Morrison, Caroline F., PhD, RN; Martsolf, Donna, PhD, RN, FAAN; Borich, Annamarie, MSN, RN; Coleman, Kristen, BSN, RN; Ramirez, Patricia, BSN, RN; Wehrkamp, Nicole, BSN, RN; Tehan, Rebecca, BA; Woebkenberg, Katherine, BS; Pai, Ahna L.H., PhD
"First, I just want to thank all the patients and families who shared their stories so openly and honestly; I am honored. Before completing this study I worked for 10 years as an inpatient bedside nurse on a pediatric stem cell transplant unit. I think the thing that surprised me the most about this study was how many stories were new to me. Working in the inpatient setting I had heard many diagnosis stories and what it was like being hospitalized. Many of the experiences families shared through this study added more depth and background then extended into their outpatient stay and survivorship. The families also seemed to go through cycles throughout the treatment process both physically and psychologically.
This study also highlighted for me the impact symptoms had on patients' abilities to manage their care. The symptoms patients talked about most were fatigue, weakness, disrupted sleep, pain, distress, anxiety and depression. Our work is building off these qualitative data that symptoms can have a negative impact on self-management. Currently, we are investigating biobehavioral predictors of symptom development during treatment and into survivorship. We look forward to sharing our results with the oncology community."
---Dr. Caroline Morrison on her paper,"Follow the Yellow Brick Road: Self-management by Adolescents and Young Adults After a Stem Cell Transplant," published in our current issue, Volume 41, Issue 5. The article may be accessed without a membership for a limited time.