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Author on Call

The function of the “Author on Call” blog is to allow our readers and authors to interact with each other in a unique way. A few select authors will be chosen to share on the blog aspects of their papers that were especially meaningful to them personally or points that may not have made it into their published report. Readers will then have the opportunity to provide comments and questions, to which the authors will respond.

At times, as seen in our first entry, we will also post separate entries to the blog on various special topics that we feel would be informational or that we welcome your feedback on.

Tuesday, August 21, 2018

Follow the Yellow Brick Road: Self-management by Adolescents and Young Adults After a Stem Cell Transplant

Follow the Yellow Brick Road: Self-management by Adolescents and Young Adults After a Stem Cell Transplant

Morrison, Caroline F., PhD, RN; Martsolf, Donna, PhD, RN, FAAN; Borich, Annamarie, MSN, RN; Coleman, Kristen, BSN, RN; Ramirez, Patricia, BSN, RN; Wehrkamp, Nicole, BSN, RN; Tehan, Rebecca, BA; Woebkenberg, Katherine, BS; Pai, Ahna L.H., PhD

"First, I just want to thank all the patients and families who shared their stories so openly and honestly; I am honored. Before completing this study I worked for 10 years as an inpatient bedside nurse on a pediatric stem cell transplant unit.  I think the thing that surprised me the most about this study was how many stories were new to me. Working in the inpatient setting I had heard many diagnosis stories and what it was like being hospitalized. Many of the experiences families shared through this study added more depth and background then extended into their outpatient stay and survivorship.  The families also seemed to go through cycles throughout the treatment process both physically and psychologically.

              This study also highlighted for me the impact symptoms had on patients' abilities to manage their care. The symptoms patients talked about most were fatigue, weakness, disrupted sleep, pain, distress, anxiety and depression. Our work is building off these qualitative data that symptoms can have a negative impact on self-management. Currently, we are investigating biobehavioral predictors of symptom development during treatment and into survivorship. We look forward to sharing our results with the oncology community."

---Dr. Caroline Morrison on her paper,"Follow the Yellow Brick Road: Self-management by Adolescents and Young Adults After a Stem Cell Transplant," published in our current issue, Volume 41, Issue 5.  The article may be accessed without a membership for a limited time.