Original ArticlesHealth Care Utilization in Frontotemporal Lobar DegenerationDiehl-Schmid, Janine MD*; Last, Dirk MD*,†; Schuster, Tibor PhD‡; Förstl, Hans MD*; Schneider-Schelte, Helga MSc§; Kurz, Alexander MD*Author Information *Department of Psychiatry ‡Institute for Medical Statistics and Epidemiology, Klinikum rechts der Isar, Technische Universität München, Ismaninger Straße †Kreiskrankenhaus Erding, Bajuwarenstr, München §Deutsche Alzheimer Gesellschaft/German Alzheimer Society, Berlin, Germany The authors declare no conflict of interest. Reprints: Janine Diehl-Schmid, MD, Department of Psychiatry, TU München, Ismaninger Str. 2281675, München, Germany (e-mail: email@example.com). Received December 20, 2010 Accepted May 20, 2011 Alzheimer Disease & Associated Disorders: April-June 2012 - Volume 26 - Issue 2 - p 166-170 doi: 10.1097/WAD.0b013e3182263edc Buy Metrics Abstract The aim of this study was to find out how patients with frontotemporal lobar degeneration are cared for, to which extent family caregivers utilize professional support, and which medical treatment patients receive. Using a standardized interview, information was obtained from the caregivers of 124 patients with frontotemporal lobar degeneration on patient survival, sociodemographic characteristics, living arrangements, health care situation including formal and informal support, and pharmacological and nonpharmacological treatment. At the time of the interview, 72 patients were still alive, whereas 52 patients had already died before the interview. Fifty-seven percent of the patients lived at home. At the time of the interview/before death, respectively, 43% of the patients had been institutionalized into a nursing home on average 6.4 years after the onset of first symptoms. The mortality risk for patients who were admitted to a nursing home was 5 times higher than for those who were cared for at home. Fifty-one percent of the patients were treated with antidepressants, 23% with antipsychotics, and 34% with cholinesterase inhibitors or memantine. Forty percent of the patients received nonpharmacological treatment. © 2012 Lippincott Williams & Wilkins, Inc.