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“It Is Hard Work, But It Is Worth It”: Patients and Spouses' Experiences of a Nursing Intervention to Promote Adjustment to Deep Brain Stimulation for Parkinson's Disease—A Parkinson disease|feasibility study|couple's perspective|content analysis|complex intervention

Haahr, Anita, PhD, MScN, RN; Østergaard, Karen, DrMSc, MD; Kirkevold, Marit, DrEd, RN

doi: 10.1097/ANS.0000000000000208
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This article evaluates the feasibility of a nursing intervention when adjusting to deep brain stimulation for Parkinson disease. Eight couples were included in the study. Main activities of the intervention were a diary and individualized meetings between nurses, patients, and spouses with a focus on everyday life and expectations to deep brain stimulation. All meetings were audio recorded and analyzed together with the content of the diary. The intervention was evaluated as feasible and experienced as meaningful. It supports the need for individualized care involving both patients and spouses and contributes to the development of an evidence-based nursing practice.

Department of Neurology, Aarhus University Hospital, Aarhus, Denmark (Drs Haahr and Østergaard); Department of Nursing Science, Institute of Health and Society, University of Oslo, Oslo, Norway (Dr Kirkevold); and Centre for Research and Development, VIA Health Promotion & Rehabilitation, Aarhus, Denmark (Dr Haahr).

Correspondence: Anita Haahr, PhD, MScN, RN, Centre for Research and Development, VIA Health Promotion and Rehabilitation, Aarhus, Denmark, DK-8200 Aarhus N, Denmark (

Author Contributions: A.H., M.K., and K.Ø. were responsible for the study conception and the overall study design. A.H. was responsible for the drafting of the manuscript. A.H. contributed the majority of the writing of the manuscript. A.H. and M.K. contributed to the analysis in the manuscript. A.H., M.K., and K.Ø. made critical revisions to the paper for important intellectual content.

This study was funded by The Health Foundation, The Foundation of July 2nd 1984 to fight Parkinson's disease, The Danish Parkinson Association, The Riisfort Foundation, Lønborg-Madsen memorial fund, Department of Neurology, Aarhus University Hospital, and VIA Rehabilitation and Health Promotion, VIA Faculty of Health Sciences. The authors thank the patients and spouses who willingly participated in the study and shared their thoughts and experiences with them during the study. The authors also thank the DBS nurses Kirsten Hansen, Katrine Braae Petersen and Steen Rusborg Jensen for making an extraordinary effort and for making the study possible to complete.

The authors have no conflict of interest to declare.

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