Original ArticlesQuality Indicators and Parental Satisfaction With Perinatal Palliative Care in the Intrapartum Setting After Diagnosis of a Life-Limiting Fetal ConditionWool, Charlotte PhD, RN; Black, Beth Perry PhD, RN; Woods, Anne B. (Nancy) PhD, RN Author Information York College of Pennsylvania (Dr Wool); University of North Carolina at Chapel Hill (Dr Black); and Messiah College, Grantham, Pennsylvania (Dr Woods). Correspondence: Charlotte Wool, PhD, RN, York College of Pennsylvania, 441 Country Club Rd, York, PA 17403 ([email protected]). The authors thank the following parent advocates: Monika Jaquier, webmaster of http://www.anencephaly.info; Amy Kuebelbeck, webmaster of http://www.perinatalhospice.org; and Victoria J. Miller, Executive Director of the Trisomy 18 Foundation at http://www.trisomy18.org.No competing financial interests exist. Advances in Nursing Science 39(4):p 346-357, October/December 2016. | DOI: 10.1097/ANS.0000000000000147 Buy Metrics Abstract Measurement of quality indicators (QIs) in perinatal palliative care has not been addressed. Parents who chose to continue pregnancy after a diagnosis of a life-limiting fetal condition described perceptions of quality care and their satisfaction with care. This research identified which QIs explained parental satisfaction. High QI scores are associated with parental satisfaction. Parents who were satisfied reported 2.9 times the odds that their baby was treated with dignity and respect and 3.4 times the odds their medical care was addressed. This research is a first step in developing a robust measure of QIs in perinatal palliative care. © 2016 Wolters Kluwer Health, Inc. All rights reserved.
